The translation gap between knowledge production and implementation into clinical practice and policy is an ongoing challenge facing researchers, funders, clinicians and policy makers globally. Research generated close to practice and in collaboration with end users is an approach that is recognised as an effective strategy to facilitate an improvement in the relevance and use of health research as well as building research capacity amongst end users. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• March 2022

This audit is used as a case study of translating knowledge processes in order to identify the factors that support equity-oriented knowledge translation. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2016
• July 2016

Co-Head, Kids Rehab Research WA; Honorary Research Fellow ...

• Telethon Kids Institute
• Contact us
• Our people
• Staff Profiles - V

Examine the reliability of field-based fitness assessments in school-aged children with emotional or behavioral difficulties (EBD). Understanding the impact of fitness on physical activity participation for children with EBD is limited by our ability to reliably measure it. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• January 2023

The COVID-19 pandemic introduced challenges to everyone in society but particularly so to every aspect of medical practice. It is bewildering how quickly the profession has had to respond to rapidly changing clinical landscape. Our well-established methods involve collecting and analyzing data to generate an evidence base which is then disseminated and implemented into routine clinical practice. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2020
• August 2020

Evidence regarding optimal management of the "Cannot Intubate, Cannot Oxygenate" (CICO) scenario in infants is scarce. When inserting a transtracheal cannula for front of neck access direct aspiration to confirm intratracheal location is standard practice. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• September 2021

Pediatric anesthesiology has been greatly impacted by COVID-19 in the delivery of care to patients and to the individual providers. With this study, we sought to survey pediatric centers and highlight the variations in care related to perioperative medicine during the COVID-19 pandemic, including the availability of protective equipment, the practice of pediatric anesthesia, and economic impact. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• June 2021

To determine parental understanding of directions on common pediatric prescription pharmacy labels and to identify enablers and barriers that affect interpretation of these labels. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• October 2021

Birk-Landau-Perez syndrome is a genetic disorder caused by biallelic pathogenic variants in SLC30A9 presenting with a complex movement disorder, developmental regression, oculomotor abnormalities, and renal impairment. It has previously been reported in 2 families. We describe the clinical phenotype of 8 further individuals from 4 unrelated families with SLC30A9-related disease. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• May 2023

To report on knowledge translation strategies and outcomes from the implementation of the early detection guidelines for cerebral palsy (CP) in a state-wide tertiary early intervention (EI) service and investigate the impact of social determinants on clinical services. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• November 2022