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        Research

        Severe Congenital Heart Defects and Cerebral Palsy

        To report the prevalence of cerebral palsy (CP) in children with severe congenital heart defects (sCHD) and the outcome/severity of the CP. ...

        Research

        Fetal alcohol spectrum disorder and Aboriginal and Torres Strait Islander men: A discussion to be had

        Fetal alcohol spectrum disorder (FASD) is a lifelong disability of varying severity that occurs among individuals prenatally exposed to alcohol. Among Aboriginal and Torres Strait Islander (Indigenous) Australians, the effects of colonisation and ongoing racism could increase the risk of alcohol consumption during pregnancy. ...

        Research

        Relationship between family quality of life and day occupations of young people with Down syndrome

        This study aimed to explore relationships between family quality of life, day occupations and activities of daily living of young persons with Down syndrome. ...

        Research

        Day occupation is associated with psychopathology for adolescents and young adults with Down syndrome

        In comparison to those young adults attending open employment from 2009 to 2011, those attending day recreation programs were reported to experience... ...

        Research

        Effect of sitting posture on development of scoliosis in duchenne muscular dystrophy cases

        This study assessed the contribution of physical factors including lumbar posture to scoliosis in non-ambulatory youth with DMD in Nepal. ...

        Research

        Caring for a child with severe intellectual disability in China: The example of Rett syndrome

        Intellectual disability affects more than 1.5% of the population of children in developing countries yet we know little about the daily lives and support... ...

        Research

        Evaluating the Extent of Clinical Uncertainty Among Treatment Options for Patients with Early-Onset Scoliosis

        The objective of this study was to evaluate areas of clinical uncertainty among pediatric spine surgeons regarding the treatment of early-onset scoliosis. ...

        Research

        Community participation: Conversations with parent-Carers of young women with Rett syndrome

        In this paper, the issue of people with profound intellectual and multiple disabilities facing significant challenges to participating in their community is... ...

        Research

        Application of Population-Based Linked Data to the Study of Intellectual Disability and Autism

        Data linkage is the bringing together of specific datasets from different sources using demographic information on individuals within a population. ...

        Research

        Conceptualizing a quality of life framework for girls with Rett syndrome using qualitative methods

        Existing quality of life scales for children in the general population or with other disabilities did not capture the QOL of children with Rett syndrome ...

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