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Our research

We're searching for answers to some of the most common and complex childhood diseases, conditions and issues. In addition to our four research themes (Indigenous Health, Brain and Behaviour, Chronic and Severe Diseases, Early Environment), you can also discover more about specific research we're involved in and the technology we use.

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About us

Discover what drives us as an organisation. Learn about history and the impact of the Institute along with the amazing ambitious goals we've achieved so far in the field of children's research.

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Info for...

Different audiences rely on us for very different things. Whether you're a valued donor, curious professional researcher, inquisitive member of the public, or a corporate supplier looking to offer support - we've collated the resources you need.

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Communication, fetal alcohol spectrum disorder, and youth justice

PhD Candidate: Natalie Kippin PhD Title: Communication, fetal alcohol spectrum disorder, and youth justice Summary Communication competency is of ...

Professional development

FASD and Justice Videos On-line Continuing Professional Development Module for Lawyers Acknowledgements We would greatly appreciate your comments on ...

Resources

Australian resources International resources Videos and on-line professional development module As part of the 'Understanding FASD - a guide for ...

Community involvement in research

Community involvement in Alcohol and Pregnancy & FASD research Consumer and community involvement is an integral part of alcohol and pregnancy & FASD ...

Community, schools, parents & carers

Australian FASD support & advocacy organisations NOFASD Australia rffada Educating a child with FASD Resources Contact us NOFASD Australia is an ...

Publications

Publications which include members of the Alcohol and Pregnancy & FASD Research Team, from 2000 to the present. ...

Alcohol and Pregnancy & FASD

About

Rett syndrome is a rare but serious neurological disorder that affects about 1 in 9,000 girls. Even more rarely, boys may be affected. ...

Rett syndrome and Related Disorders

Behavior and mutation type

Article Title Robertson L, Hall S, Jacoby P, Ellaway C, De Klerk N, Leonard H. The association between behaviour and genotype in Rett Syndrome using ...

A validation study of a modified Bouchard activity record

Article title Lor, L., Hill, K., Jacoby, P., Leonard, H., & Downs, J. (2015). A validation study of a modified Bouchard activity record that extends ...

Physical and mental health of mothers caring for a child with Rett syndrome

Article title Laurvick CL, Msall ME, Silburn S, Bower C, de Klerk N, Leonard H. Physical and mental health of mothers caring for a child with Rett ...

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