The internet is emerging as a valuable tool for scientists to gather data for critical research into rare diseases. ...

• 1. Telethon Kids Institute
• News & Events
• News & Events at Telethon Kids
• 2008
• October

There is limited but consistent evidence that suggests prenatal factors, including maternal stress, may contribute to susceptibility for otitis media. We aimed to determine the effect of multiple life stress events during pregnancy on risk of acute and recurrent otitis media in offspring at three and five years of age.  ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2024
• June 2024

Involvement in healthcare decisions is associated with better health outcomes for patients. For children and adolescents with intellectual disability, parents and healthcare professionals need to balance listening to a child's wishes with the responsibility of keeping them safe.  ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2024
• June 2024

Children with complex needs and severe disability may undergo gastrostomy insertion to support feeding difficulties. Parent education programs are critical components of clinical care pathways but there is little information on parent-reported educational needs. This study describes the collaborative process that yielded a resource to assist parents considering gastrostomy tube placement for their children, and the evaluation of the resource.  ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• November 2023

To determine the constellation of lifestyle and demographic factors that are associated with poor mental health in an adolescent population. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2011
• January 2011

This study examined the association between typical parental work hours (including nonemployed parents) and children's behavior in two-parent heterosexual... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2013
• February 2013

This study explores how the first wave of the COVID‐19 pandemic influenced family routines, relationships and technology use (smartphones and tablet computers) among families with infants. Infancy is known to be an important period for attachment security and future child development, and a time of being susceptible to changes within and outside of the family unit. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• December 2021

People with intellectual disability fall at a younger age compared with the broader community ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• December 2019

Synthesized findings demonstrate that people with intellectual disability, who live in community or residential settings, may fall more frequently, and at a younger age ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• March 2019

Maternal diet during pregnancy has long been recognised as an important determinant of neonatal outcomes and child development. Infant body composition is a potentially modifiable risk factor for predicting future health and metabolic disease. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• August 2022