Telethon Kids Institute researchers set out on a worldwide search to find out all they could about Rett syndrome, establishing databases and creating awareness. ...

• 1. Telethon Kids Institute
• News & Events
• News & Events at Telethon Kids
• 2016
• May

The Australian Early Development Index (AEDI) program is conducted by the Centre for Community Child Health ...

• 1. Telethon Kids Institute
• News & Events
• News & Events at Telethon Kids
• 2008
• January

There is accumulating evidence for a link between maternal stress during pregnancy and later behavioural and emotional problems in children. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2010
• August 2010

The aim of this project was to identify the top 10 priorities for childhood chronic conditions and disability (CCD) research from the perspectives of children and young people with lived experience, their parents and caregivers and the professionals who work with them. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• April 2023

The current study used a transdiagnostic approach to explore experiences of consumers and professionals on how the process of assessing and diagnosing neurodevelopmental conditions can be improved. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• December 2022

The natural history of MECP2 duplication syndrome (MDS), a rare X-linked neurodevelopmental disorder with an estimated birth prevalence of 1/150,000 live births, is poorly understood due to a lack of clinical data collected for research. Such information is critical to the understanding of disease progression, therapeutic endpoints and outcome measures for clinical trials, as well as the development of therapies and orphan products. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• July 2022

Gender dysphoria is experienced differently by everyone. Here are some ideas that could help trans and gender diverse young people cope with dysphoria. ...

• 1. Telethon Kids Institute
• Our research
• Brain and Behaviour
• Mental Health and Youth Program
• Youth Mental Health
• SPARX-T

Benefits in teaching the Alert Program® to students in a region with high reported rates of foetal alcohol spectrum disorder and self-regulation impairment ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2020
• March 2020

People with intellectual disabilities are at a higher risk for experiencing behavioral, emotional, and psychiatric problems in comparison with the general... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2015
• May 2015

Young adults who are lesbian, gay, bisexual, trans, queer or questioning, intersex, asexual and other diverse genders and sexualities (LGBTQIA+) are more likely to experience mental health difficulties and are at significantly elevated risk of substance abuse, self-harm and suicide, relative to their heterosexual, endosex and cisgender peers. There is a need for effective mental health interventions for LGBTQIA+ young adults. Mindful Self-Compassion training is a promising approach; among LGBTQIA+ individuals, self-compassion accounts for more variation in mental health outcomes than bullying, victimization, and adverse childhood experiences combined. Furthermore, LGBTQIA+ individuals with high self-compassion report more positive identity and happiness, less self-stigma, and lower suicidality than those with low self-compassion. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• January 2021