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        Research

        International Rett syndrome study: InterRett

        Helen Jenny Leonard Downs HM JA MBChB MPH BApplSci (physio) MSc PhD Principal Research Fellow Program Head, Development and Disability +61 419 956 ...

        Research

        Implementing Telehealth support to increase physical activity in girls and women with Rett syndrome

        Helen Jenny Leonard Downs HM JA MBChB MPH BApplSci (physio) MSc PhD Principal Research Fellow Program Head, Development and Disability +61 419 956 ...

        Research

        Sibling Stories: Improving the mental health of siblings of trans youth

        Helen Yael Penelope Morgan Perry Strauss HM YP PS BA (Hons), Doctor of Psychology BPsych (Hons) MPsych (Clin) PhD BA, MPH, PhD Senior Project ...

        News & Events

        Tackling allergy prevention in early life

        The Childhood Allergy and Immunology Research Team at the Telethon Kids Institute are currently conducting four studies, through The ORIGINS Project, investigating nutritional strategies in the diets of mothers and babies and how these may reduce the development of allergies. ...

        News & Events

        Child health and obesity the focus of international built environment study

        Research data from more than one million Australian and Welsh children will be examined to help better understand how the built environment affects child health and obesity, as part of an international research project to be co-led by the Telethon Kids Institute. ...

        News & Events

        Researcher to plot evolving junk food landscape around every single school in Perth

        A Telethon Kids Institute researcher will map every food business and school in Perth to investigate the influence of the food environment on children’s food intake and health. ...

        Research

        Cerebral Palsy

        A non-progressive motor disability due to damage of the developing brain, this is the most common physical disability in childhood. Affecting about one in 500 babies, it is frequently accompanied by other neurological impairments, such as intellectual or sensory. ...

        Research

        A massive hit that targets kids quite a bit: Where and how Australian school children see energy drinks

        Energy drinks (EDs) are not recommended for children due to their high caffeine content and adverse health risks. Their popularity among children may be due to children's exposure to ED marketing. This study aimed to identify where children have seen ED marketing and whether they believe ED marketing targets them. ...

        Research

        Enablers and barriers in dental attendance in Rett syndrome: an international observational study

        Intellectual and developmental disabilities are heterogeneous in aetiology and presentation, and one cannot make assumptions about the oral health barriers of those with Rett syndrome (RTT) based on findings from generic studies. This study investigated caregivers' perceptions regarding access to dental care for those with RTT, and associations of dental treatments received by those with RTT with their caregivers' perceived value of oral health and perception of their own as well as their daughter's dental anxiety. ...

        Research

        Quality of life is poorly correlated to lung disease severity in school-aged children with cystic fibrosis

        There is no data exclusively on the relationship between health-related quality-of-life (HRQOL) and lung disease severity in early school-aged children with cystic fibrosis (CF). Using data from the Australian Respiratory Early Surveillance Team for Cystic Fibrosis (AREST CF) we assessed the relationships between HRQOL, lung function and structure. ...

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