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        Conceptualizing a quality of life framework for girls with Rett syndrome using qualitative methods

        Article title Epstein A, Leonard H, Davis E, Williams K, Reddihough D, Murphy N, Whitehouse A, Downs J. Conceptualizing a quality of life framework ...

        Longitudinal bone mineral content and density in Rett syndrome and their contributing factors

        Article title Jefferson, A., Fyfe, S., Downs, J., Woodhead, H., Jacoby, P., & Leonard, H. (2015). Longitudinal bone mineral content and density in ...

        Using a large international sample to investigate epilepsy in Rett syndrome

        Article title Bao X, Downs J, Wong K, Williams S, Leonard H. Using a large international sample to investigate epilepsy in Rett syndrome. ...

        Seizures in Rett syndrome: an overview from a one-year calendar study

        Article title Jian L, Nagarajan L, de Klerk N, Ravine D, Christodoulou J, Leonard H. Seizures in Rett syndrome: an overview from a one-year calendar ...

        Publications

        Mori Y, Downs J, Wong K, et al. Longitudinal effects of caregiving on parental well-being: the example of Rett syndrome, a severe neurological ...

        Our People

        Contact Us To find out any more information about how you can be involved, don't hesitate to contact us. Email: Helen.Leonard@telethonkids.org.au  ...

        Routines to maximise uptime

        For someone who can stand but not walk For someone who walks with assistance For someone who can walk independently Here are some routines that some ...

        Participate in CDKL5 Research

        Participate in CDKL5 Research How Can You Participate? Search our CDKL5 database If you are interested in participating in the database, you can ...

        News & Events

        HBF Run for a Reason 2013

        What a fabulous day we had on Sunday at the HBF Run for a Reason in Perth, where Rett syndrome was extremely well represented! ...

        News & Events

        8th World Congress on Rett syndrome

        Thank you to all guests and participants of this year's 8th World Congress on Rett syndrome, which was held from May 13-17th, 2016 in Kazan, Russia. ...

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