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        Research

        Contemporary survival endpoints: An international diffuse intrinsic pontine glioma registry study

        This study defines PFS and OS, and is the first describe post-progression survival in a large cohort of children with DIPG. ...

        Research

        A Phase I Study of the CDK4/6 Inhibitor Ribociclib (LEE011) in Pediatric Patients with Malignant Rhabdoid Tumors, Neuroblastoma, and Other Solid Tumors

        In this. i study the MTD and RP2D, safety, PK, and preliminary activity of single-agent ribociclib were investigated in patients with neuroblastoma. ...

        Research

        Challenges in the Management of Childhood Intracranial Germ Cell Tumors in Middle-Income Countries: A 20-Year Retrospective Review From a Single Tertiary Center in Malaysia

        A higher incidence of pediatric intracranial germ cell tumors (iGCTs) in Asian countries compared with Western countries has been reported. In Malaysia, the literature regarding pediatric iGCTs have been nonexistent. The aim of this study was to review the management, survival, and long-term outcomes of pediatric iGCTs at a single tertiary center in Malaysia. ...

        Research

        What matters for people with brain cancer? Selecting clinical quality indicators for an Australian Brain Cancer Registry

        The goal of a clinical quality registry is to deliver immediate gains in survival and quality of life by delivering timely feedback to practitioners, thereby ensuring every patient receives the best existing treatment. We are developing an Australian Brain Cancer Registry (ABCR) to identify, describe, and measure the impact of the variation and gaps in brain cancer care from the time of diagnosis to the end of life. ...

        Research

        'Walking their walk': Reducing conflict between families of ill children and the medical profession

        I review recent high-profile court cases to underscore the changing landscape of conflict and the central role that the media (and social media in particular) can play ...

        Research

        Interactions between acute lymphoblastic leukemia and bone marrow stromal cells influence response to therapy

        The cure rate for pediatric patients with B precursor acute lymphoblastic leukemia (pre-B ALL) is steadily improving, however relapses do occur despite... ...

        News & Events

        Communication tools

        For Speech Pathology Week, we asked our speech pathologists to share their favourite resource/s and how they like to use it. ...

        News & Events

        News you can use – How you can support your child while you wait for a diagnosis

        Telethon Kids Institute's Professor Andrew Whitehouse and Sarah Pillar share four things families can do to support their child while waiting to receive an ADHD or autism diagnostic assessment. ...

        News & Events

        Telethon Kids data expert joins life-changing Raine Study

        Congratulations to Associate Professor Rebecca Glauert, Head of the Developmental Pathways and Social Policy Team at Telethon Kids Institute and an internationally recognised expert in data linkage. ...

        News & Events

        R U OK Day: Top tips for responding to someone who isn’t ‘OK’

        It’s important to ask, R U OK. If someone replies that they’re not, don’t panic – there are ways you can help. ...

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