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        News & Events

        Visit to Shenzhen, China

        Helen and Jenny visited Shenzhen in the south of China twice during 2013 to talk with clinicians and families at the Shenzhen Children's Hospital. ...

        Participate in AussieRett

        Participate in AussieRett How Can You Participate? Contact Us AussieRett is the Australian Rett syndrome research study. We collect information on ...

        Participate in InterRett / MECP2 Duplication Research

        Participate in InterRett / MECP2 Duplication Research How Can You Participate? Contact Us Families - How do we collect and analyse your data? The ...

        Guidelines, reports and books

        Contact Us To find out any more information about how you can be involved, don't hesitate to contact us. Email: Helen.Leonard@telethonkids.org.au  ...

        Toolkit of uptime strategies

        Stand more Walk more Anything you can do to  stand more  or  walk more  is good! Each of the activities on this page has been done by families of ...

        Altered attainment of developmental milestones

        Article title Fehr S, Bebbington A, Ellaway C, Rowe P, Leonard H and Downs J 2011, 'Altered attainment of developmental milestones influences the age ...

        News and events

        Featured News Contact Us Contact Us Contact Us Contact Us Contact Us Contact Us Contact Us Contact Us Contact Us Contact Us Contact Us In the media ...

        News & Events

        New guidelines a model for better management of rare conditions

        New guidelines a model for better management of rare conditions ...

        Linking MECP2 and pain sensitivity

        Article title Downs, J, Geranton, SM, Bebbington, A, Jacoby, P, Bahi-Buisson, N, Ravine, D & Leonard, H 2010, 'Linking MECP2 and pain sensitivity: ...

        Behavior and mutation type

        Article Title Robertson L, Hall S, Jacoby P, Ellaway C, De Klerk N, Leonard H. The association between behaviour and genotype in Rett Syndrome using ...

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