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        Research

        Indigenous Australian genomes show deep structure and rich novel variation

        The Indigenous peoples of Australia have a rich linguistic and cultural history. How this relates to genetic diversity remains largely unknown because of their limited engagement with genomic studies. Here we analyse the genomes of 159 individuals from four remote Indigenous communities, including people who speak a language (Tiwi) not from the most widespread family (Pama-Nyungan). This large collection of Indigenous Australian genomes was made possible by careful community engagement and consultation. ...

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        Alexandra Whelan

        Co-Program Manager ...

        0863191618 Email me
        News & Events

        Community Conversation wrap up

        The Children's Diabetes Centre recently held its first-ever Community Conversation for the diabetes community to have their say on issues important to them. ...

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        Lisa Wiese

        Program Manager, Skin Health ...

        08 6319 1000 Email me LinkedIn
        People

        Thomas Betts

        Project Officer ...

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        Kerryn Gidgup

        Aboriginal Research Assistant ...

        COVID-19 Research

        COVID-19 research at Telethon Kids Institute Research news We need research now more than ever Thanks to 30 years of support from the WA community, ...

        Community involvement

        Our community reference groups Telethon Kids Institute is committed to involving consumers and the community in all aspects of our research. One way ...

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        Charlotte Ryall

        Research Assistant ...

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        Research

        Development of the Consumer Involvement & Engagement Toolkit: a digital resource to build capacity for undertaking patient-centred clinical trials in Australia

        This paper describes the novel approach to developing a toolkit to support meaningful consumer involvement in clinical trials in Australia to help guide others in considering the development of similar resources.The toolkit aims to support greater consumer involvement in shaping how clinical research is prioritised, designed and conducted. Type of program or service: A working group of researchers, research organisations and consumers was established to co-develop the Consumer Involvement and Engagement Toolkit (the 'Toolkit'), a digital resource to guide researchers and organisations regarding consumer involvement in clinical trials. ...

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