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        Research

        Facing the Ethical Challenges: Consumer Involvement in COVID-19 Pandemic Research

        Consumer involvement in clinical research is an essential component of a comprehensive response during emergent health challenges. During the COVID-19 pandemic, the moderation of research policies and regulation to facilitate research may raise ethical issues. ...

        Research

        Consumer research priorities for pediatric anesthesia and perioperative medicine

        Consumer-driven research is increasingly being prioritized. Aim: Our aim was to partner with consumers to identify the top 10 research priorities for pediatric anesthesia and perioperative medicine. The ACORN (Anesthesia Consumer Research Network) was formed to collaborate with children and families across Australia. ...

        Research

        Principles for consumer involvement in health and medical research

        Citation: McKenzie A. Principles for consumer involvement in health and medical research. Respirology. 2023 ...

        Research

        Collaborating with consumer and community representatives in health and medical research in Australia:

        The objective of this tudy was to collaborate with consumer and community representatives in the Alcohol and Pregnancy Project from 2006-2008 ...

        News & Events

        Consumer engagement jewel recognised for changing the conversation on health research

        Pioneering health consumer advocate Anne McKenzie AM has been awarded the National Health and Medical Research Council’s prestigious Consumer Engagement Award in recognition of an almost 30-year career. ...

        Research

        What is known about consumer nutrition environments in Australia? A scoping review of the literature

        This study aimed to summarize the attributes that have been examined in existing peer-reviewed studies of Australian consumer nutrition environments ...

        News & Events

        From Diagnosis to Consumer Representative – Danae’s journey to making a difference

        From Diagnosis to Consumer Representative – Danae’s journey to making a difference ...

        Research

        The effectiveness of a Consumer Centred Tobacco Management (CCTM) approach in enabling mental health consumers to reduce or quit smoking

        Francis Steve Sarah Mitrou Zubrick Johnson FG SR SJ BEc FASSA, FAAMHS, MSc AM PhD BA, PostGradDip; PhD Program Head, Population Health, and Team Head ...

        Research

        Consumer perspectives on simplified, layered consent for a low risk, but complex pragmatic trial

        For decades, the research community has called for participant information sheets/consent forms (PICFs) to be improved. Recommendations include simplifying content, reducing length, presenting information in layers and using multimedia. However, there are relatively few studies that have evaluated health consumers' (patients/carers) perspectives on the type and organisation of information, and the level of detail to be included in a PICF to optimise an informed decision to enter a trial. ...

        Research

        Feasibility of a Consumer Centred Tobacco Management intervention in Community Mental Health Services in Australia

        This study tested a new program for helping smokers with severe mental illness to reduce their tobacco use, together with determining the feasibility of such research in community mental health settings in Australia. ...

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