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        Research

        Psychometric Properties of the EQ-5D-Y-5L for Children With Intellectual Disability

        The EQ-5D-Y-5L is a generic preference-based measure of health-related quality of life for children. This study aimed to describe the distributional properties, test-retest reliability, and convergent validity of the EQ-5D-Y-5L in children with intellectual disability (ID).  ...

        News & Events

        Kids Easy Breathing Study Kickstarts

        The Kids Easy Breathing Study kickstarts this month, with the aim of finding out how the airway surface is different between infants who develop chronic lung disease after contracting bronchiolitis compared with those who don’t. ...

        Research

        Raising strong, solid Koolunga: Values and beliefs about early child development among Perth's Aboriginal community

        We detail the unique findings from an Aboriginal early child development research project with a specific focus on the Nyoongar/Aboriginal community of Perth ...

        Research

        Ngulluk Moort, Ngulluk Boodja, Ngulluk Wirin (our family, our country, our spirit): An Aboriginal Participatory Action Research study protocol

        Globally, Indigenous children have historical and contemporary connections with government child protection services that have caused significant harm to their long-term health and wellbeing. Innovative, culturally secure and recovery focussed service provision is required. ...

        About

        Learn more about the Wesfarmers Centre of Vaccines & Infectious Diseases ...

        News & Events

        Thumbs up from first preterm study participant to use new lung function testing equipment

        Natasha, who is a participant in the West Australian Lung Health in Prematurity (WALHIP) study, this week became the first person to receive a lung health assessment using new state-of-the-art lung function testing equipment at Perth Children’s Hospital. ...

        Research

        Feasibility of a Consumer Centred Tobacco Management intervention in Community Mental Health Services in Australia

        This study tested a new program for helping smokers with severe mental illness to reduce their tobacco use, together with determining the feasibility of such research in community mental health settings in Australia. ...

        News & Events

        New collaboration to boost kids early childhood development outcomes across Australia

        A new collaboration has been launched to fast track research into action to improve outcomes in the crucial early years of child development and learning. ...

        News & Events

        Giving wings to a generation of Indigenous leaders

        In 2005, the Telethon Kids Institute won a National Health & Medical Research Council Indigenous Capacity Building Grant. ...

        Research

        How Well Does the EQ-5D-Y-5L Describe Children With Intellectual Disability?: “There's a Lot More to My Child Than That She Can't Wash or Dress Herself.”

        The EQ-5D-5L is a generic health utility instrument for measuring health-related quality of life (HRQoL), with self-report and proxy report versions for children (EQ-5D-Y-5L). Children with intellectual disability (ID) are a heterogeneous population whose impairments and comorbidities place them at risk of poor HRQoL. This study aimed to describe the content validity and suitability for children with ID of a proxy report version of the EQ-5D-Y-5L as seen by their caregivers. ...

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