Browse study websites

Discover. Prevent. Cure.

Menu Fundraise Donate

    Recommended pages

      Do you mean

        241-250 of 703 results for 'autism mental health'

        Refine search

        Research

        Negative impact of insomnia and daytime sleepiness on quality of life in individuals with the cyclin-dependent kinase-like 5 deficiency disorder

        Cyclin-dependent kinase-like 5 (CDKL5) gene pathogenic variants result in CDKL5 deficiency disorder (CDD). Early onset intractable epilepsy and severe developmental delays are prominent symptoms of CDD. Comorbid sleep disturbances are a major concerning symptom for families. ...

        Research

        Validating the rett syndrome gross motor scale

        The Rett Syndrome Gross Motor Scale could be an appropriate measure of gross motor skills in clinical practice and clinical trials ...

        Research

        Initial Validation and Reliability of the CDKL5 Deficiency Disorder Hand Function Scale (CDD-Hand)

        Pathogenic variants in the CDKL5 gene result in CDKL5 deficiency disorder (CDD), which is characterized by early-onset epilepsy, severe developmental delay, and often, cortical visual impairment. Validated clinical outcome measures are needed for future clinical trials to be successful. This study aimed to adapt the Rett Syndrome Hand Function Scale for CDKL5 deficiency disorder and evaluate its feasibility, acceptability, content validity, and reliability. ...

        News & Events

        Youth mental health survey during COVID lockdown supports calls for “blended” services

        A state-wide survey conducted by Telethon Kids Institute researchers has found there are significant benefits to offering youth mental health treatment via telehealth services. ...

        Research

        To Feel Belonged: The Voices of Children and Youth with Disabilities on the Meaning of Wellbeing

        The aim of this paper was to describe the meaning of wellbeing for children and youth with disabilities from their perspective. ...

        News & Events

        National Grants for Innovative Child Health Research

        Perth's Telethon Institute for Child Health Research has been awarded more than 3 million dollars from the National Health and Medical Research Council (NHMRC) ...

        Research

        Use of equipment and respite services and caregiver health among Australian families living with Rett syndrome

        This study assessed factors that could influence equipment and respite services use among Australian families caring for a girl/woman with Rett syndrome and... ...

        Research

        Daytime sleepiness and emotional and behavioral disturbances in Prader-Willi syndrome

        Individuals with Prader-Willi syndrome (PWS) often have excessive daytime sleepiness and emotional/behavioral disturbances. The objective of this study was to examine whether daytime sleepiness was associated with these emotional/behavioral problems, independent of nighttime sleep-disordered breathing, or the duration of sleep. ...

        Research

        Exploring quality of life of children with cerebral palsy and intellectual disability: What are the important domains of life?

        An estimated half of all children with cerebral palsy also have comorbid intellectual disability, the domains of QOL for these children are not well understood ...

        Research

        Older maternal age is associated with depression, anxiety, and stress symptoms in young adult female offspring

        Older maternal age is associated with depression, anxiety, and stress symptoms in young adult females ...

        Page 25 of 71