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        Senior Research Officer Child Disability Rare Diseases Program

        The Opportunity An opportunity to become a valued menber of the Child Disability team which is led by Associate Professor Helen Leonard and Dr Jenny ...

        Research

        Parent-observed thematic data on quality of life in children with autism spectrum disorder

        Parent observations provide an initial framework for understanding quality of life in autism spectrum disorder ...

        Research

        Psychometric properties of the Quality of Life Inventory-Disability (QI-Disability) measure

        Initial evaluation suggests that QI-Disability is a reliable and valid measure of quality of life across the spectrum of intellectual disability ...

        Research

        Psychometric Properties of the EQ-5D-Y-5L for Children With Intellectual Disability

        The EQ-5D-Y-5L is a generic preference-based measure of health-related quality of life for children. This study aimed to describe the distributional properties, test-retest reliability, and convergent validity of the EQ-5D-Y-5L in children with intellectual disability (ID).  ...

        Research

        Data Linkage: Canadian and Australian Perspectives on a Valuable Methodology for Intellectual and Developmental Disability Research

        Building data linkage capabilities, and how linked databases can be used to identify persons with IDD and used for population-based research ...

        Research

        Patterns of depressive symptoms and social relating behaviors differ over time from other behavioral domains for young people with Down syndrome

        People with intellectual disabilities are at a higher risk for experiencing behavioral, emotional, and psychiatric problems in comparison with the general... ...

        Research

        The contributions of fetal growth restriction and gestational age to developmental outcomes at 12 months of age: A cohort study

        Developmental assessment of infants with fetal growth restriction was mostly comparable to those born without fetal growth restriction at 12 months ...

        Research

        Public Health Approach to Child Abuse and Neglect: Antecedents and Outcomes

        Melissa Fiona Helen Rebecca Peter O'Donnell Stanley Leonard Glauert Jacoby M FJ HM RA PJ BPsych (Hons), MPsych, GradDip Ed, PhD FAA FASSA MSc MD ...

        Child Disability

        Improving the lives of children with a disability and their families sits at the core of our team. ...

        Research

        Early motor function of children with autism spectrum disorder: A systematic review

        Early motor impairments have been reported in children with neurodevelopmental disorders (NDD), but it is not clear if early detection of motor impairments can identify children at risk for NDD or how early such impairments might be detected. Our aim was to characterize early motor function in children later diagnosed with NDD relative to typically developing children or normative data. ...

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