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        Research

        Pre-existing differences in mothers of children with Autism Spectrum disorder and/or intellectual disability: A review

        The aim of this study is to review research on the pre-existing characteristics which differentiate mothers of children with ASD and/or ID of unknown cause... ...

        Research

        Experience of gastrostomy using a quality care framework: The example of rett syndrome

        Gastrostomy assisted the management of feeding difficulties and poor weight gain, and was acceptable to families ...

        Research

        The trajectories of sleep disturbances in Rett syndrome

        This paper demonstrated that the evolution of sleep problems differed between subgroups of girls and women with Rett syndrome, in part explained by age and... ...

        Research

        Young adults with intellectual disability transitioning from school to post-school: A literature review framed within the ICF

        The purpose of this review was to describe literature relating to transition for young people with an intellectual disability and identify knowledge base gaps. ...

        Research

        Measuring use and cost of health sector and related care in a population of girls and young women with Rett syndrome

        This study measured use and cost of health sector and related services in Rett syndrome and effects of socio-demographic, clinical severity and genetic factors ...

        Research

        Autism and intellectual disability are differentially related to sociodemographic background at birth

        We used population data on Western Australian singletons born from 1984 to 1999 (n = 398,353) to examine the sociodemographic characteristics of children... ...

        Research

        Characterising quality of life and its determinants for children with intellectual disability and their families

        Andrew Helen Jenny Nada Peter Whitehouse Watch and listen to Andrew Leonard Downs Murphy Jacoby AJ HM JA NM PJ PhD MBChB MPH BApplSci (physio) MSc ...

        Research

        IDEA (Intellectual Disability Exploring Answers) Database

        Carol Helen Bower Leonard C HM MBBS MSc PhD FAFPHM DLSHTM FPHA MBChB MPH Senior Principal Research Fellow, Alcohol and Pregnancy & FASD Research; ...

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        QI-Disability

        What is QI-Disability? What does QI-Disability measure? How has QI-Disability been used? Publications Our research team Contact information Our ...

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