Although record linkage of routinely collected health datasets is a valuable research resource, most datasets are established for administrative purposes and... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2013
• March 2013

Prevalence statistics for autism spectrum disorders (ASD) vary widely across geographical boundaries. Some variation can be explained by diagnostic methods... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2011
• February 2011

This study describes the impact of having a sibling with Down syndrome or Rett syndrome using a questionnaire completed by parents. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2008
• August 2008

This study compared the behavior profile of cases in the Australian Rett Syndrome Database (ARSD) with those in a British study using the Rett Syndrome... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2006
• October 2006

We provide new evidence to support current guidelines for orchidopexy before age 18 months to decrease the risk of future testicular cancer and infertility ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2018
• October 2018

A huge congratulations to Telethon Kids Institute founding researcher, Emeritus Professor Carol Bower, who has been recognised in the King’s Birthday Honours for her profound impact on child and public health over a 40-year career. ...

• 1. Telethon Kids Institute
• News & Events
• News & Events at Telethon Kids
• 2023
• June

This paper discusses changes in diagnostic criteria, decreasing age at diagnosis, improved case ascertainment, diagnostic substitution, and social influences. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2010
• February 2010

Honorary Research Associate ...

• 1. Telethon Kids Institute
• Contact us
• Our people
• Staff Profiles - M

A ground-breaking Telethon Kids Institute study, which revealed that almost every young person being held in the Banksia Hill Detention Centre had some form of neuro-disability, has sparked concern and conversation across Australia and the world. ...

• 1. Telethon Kids Institute
• News & Events
• News & Events at Telethon Kids
• 2018
• July

The Rural Infant Feeding Study aimed to describe the factors associated with breastfeeding practice from birth to 12 months of age in rural Western Australia. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2015
• August 2015