The purpose of this study was to describe qualitatively the experience of parenting for mothers of a child with Down syndrome. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2012
• March 2012

This study compared the behavior profile of cases in the Australian Rett Syndrome Database (ARSD) with those in a British study using the Rett Syndrome... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2006
• October 2006

Prevalence statistics for autism spectrum disorders (ASD) vary widely across geographical boundaries. Some variation can be explained by diagnostic methods... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2011
• February 2011

This study describes the impact of having a sibling with Down syndrome or Rett syndrome using a questionnaire completed by parents. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2008
• August 2008

Estimates of the prevalence of intellectual disability or autism spectrum disorder may vary depending on the methodology, geographical location, and sources of ascertainment. The National Disability Insurance Scheme in Australia was introduced progressively from 2016 to provide individualized funding for eligible people with a significant and permanent disability. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2024
• May 2024

The positive association between caesarean section (CS) and autism spectrum disorder (ASD) may be attributed to preterm delivery. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• April 2017

To investigate survival up to early adulthood for children with intellectual disability and compare their risk of mortality with that of children without intellectual disability. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• September 2017

Children born to parents with intellectual disability (ID) have been shown as disproportionally represented in child protection services however with limited population-based research. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• February 2022

Nonrecurrent risk of stillbirth, Preterm birth, and small for gestational age after exposure to one or more of these complications in a previous pregnancy ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2018
• January 2018

Conception within 12 months of a stillbirth was common and was not associated with increased risk of adverse outcomes in the subsequent pregnancy ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• April 2019