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        News & Events

        Child health research set to benefit from national grants

        Researchers at the Telethon Kids Institute have been awarded $4.6 million in national funding from the National Health and Medical Research Council (NHMRC) and Medical Research Future Fund (MRFF) to help support child health research. ...

        News & Events

        New Co-directors for the Wesfarmers Centre of Vaccines and Infectious Diseases

        Dr Lea-Ann Kirkham and Dr Chris Blyth have been appointed as Co-Directors ...

        News & Events

        Trans Pathways researcher recognised as one of Australia’s Tomorrow Makers

        Youth mental health researcher Penelope Strauss has been named an AMP Tomorrow Maker – the first researcher from the Telethon Kids Institute to win one of the annual AMP Foundation grants. ...

        News & Events

        Celebrating 25 years

        As our Founding Director Fiona Stanley puts it, The Telethon Kids Institute was formed on a "wing and a prayer". ...

        Research

        Developing sensitive endpoints for respiratory disease progression in children with neuromuscular disease

        We hope that through earlier diagnosis and treatment of muscle weakness during sleep, we can prevent future lung failure in children with neuromuscular disorders. ...

        Research

        Rett Syndrome Behaviour Questionnaire in Children and Adults With Rett Syndrome: Psychometric Characterization and Revised Factor Structure

        Rett syndrome (RTT) is a severe neurodevelopmental disorder associated with multiple neurobehavioral abnormalities. The Rett Syndrome Behaviour Questionnaire (RSBQ) was developed for pediatric RTT observational studies. Because its application has expanded to adult and interventional studies, we evaluated the RSBQ's psychometric properties in six pediatric (n = 323) and five adult (n = 309) datasets. ...

        RHD Endgame Strategy

        RHD Endgame Strategy: Evidence Briefs 5 Priority Areas for Implementation Priority Action Areas Acknowledgements Increasing access to swimming pools ...

        Research

        Oral health care and service utilisation in individuals with Rett syndrome: an international cross-sectional study

        There is a dearth of literature available on the comparative oral health status of those with Rett syndrome (RTT) despite diurnal bruxism being a supportive diagnostic criterion for the disorder. This study was designed to investigate the dental experiences of individuals with RTT in terms of perceived at-home and professional dental care. ...

        Research

        Physical activity participation among children diagnosed with mental health disorders: A qualitative analysis of children’s and their guardian’s perspectives

        Children with mental health disorders have lower physical activity levels compared to their peers; however, minimal research has been conducted to date to understand their unique experiences of physical activity. We sought to better understand these experiences, along with contributing factors, through interviews with children with mental health disorders and their parents/guardians. ...

        Research

        Management of oral and dental problems in Rett syndrome: a narrative review of the literature

        Review of the available dental literature on assessment and management of the oral manifestations of Rett syndrome ...

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