Across Australia, more than 5,000 Aboriginal and Torres Strait Islander people are currently living with rheumatic heart disease (RHD) or its precursor, acute rheumatic fever (ARF). ...

• End Rheumatic Heart Disease Centre of Research Excellence
• News & Events
• 2021
• December

Francis Ha Steve Mitrou Nguyen Zubrick FG HN SR BEc PhD FASSA, FAAMHS, MSc AM PhD Program Head, Population Health, and Team Head, Human Development ...

• 1. Telethon Kids Institute
• Projects
• The ARC Centre of Excellence for Children and Families over the Life Course

Aboriginal and Torres Strait Islander people do not enjoy equal access to specialist health services that adequately meet their needs. Clinical genetics services are at the vanguard of realising the health benefits of genomic medicine. As the field continues to expand in clinical utility and implementation, it is critical that Aboriginal and Torres Strait Islander people are able to participate and benefit equally to avoid further widening of the existing health gap. This is the first study to explore barriers to accessing clinical genetics services among Aboriginal and Torres Strait Islander people, which has been acknowledged as a key strategic priority in Australian genomic health policy. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• April 2021

Establishing a genomic reference for Australian Aboriginal populations ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2016
• January 2016

Shakara Yael Bep Liddelow-Hunt Perry Uink SLH YP BU BPhil(Hons) BPsych (Hons) MPsych (Clin) PhD BPsych(Hons.), MAppPsy(Clinical), PhD Research ...

• 1. Telethon Kids Institute
• Projects

Revisiting data for more positive change Next chapter for major study A quarter of a century later, it’s hoped the power of those reports will again ...

• 1. Telethon Kids Institute
• Our research
• Research Impact
• 2023
• In the pipeline

The prognosis of young Indigenous Australians diagnosed with severe RHD is bleak; interventions must focus on earlier detection and treatment ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• March 2017

Francis Steve Mitrou Zubrick FG SR BEc FASSA, FAAMHS, MSc AM PhD Program Head, Population Health, and Team Head, Human Development and Community ...

• 1. Telethon Kids Institute
• Projects
• The ARC Centre of Excellence for Children and Families over the Life Course

Francis Ha Steve Mitrou Nguyen Zubrick FG HN SR BEc PhD FASSA, FAAMHS, MSc AM PhD Program Head, Population Health, and Team Head, Human Development ...

• 1. Telethon Kids Institute
• Projects
• The ARC Centre of Excellence for Children and Families over the Life Course

We describe the application of a participatory action research methodology that is grounded in Aboriginal worldviews ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• October 2019