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        Gender Equity, Diversity, and Inclusivity

        Mailing list Discover. Prevent. Cure. At Telethon Kids, we are advancing inclusivity through strategies and actions What's been happening What's ...

        News & Events

        Telethon Kids Institute's Mitch Messer wins at WA of the Year Awards

        Telethon Kids Institute extends its warmest congratulations to health consumer champion Mitch Messer, who won the Community category at the 2024 West Australian of the Year awards last night.  ...

        News & Events

        New funding targets diabetes and heart disease health service gaps

        Researchers will work with Aboriginal & Torres Strait Islander women in SA to devise better ways to care for women at risk of pregnancy complications caused by diabetes and cardiovascular disease. ...

        CONNECT

        MEDIA ENQUIRIES Discover. Prevent. Cure. In the News Media Contacts About Telethon Kids Institute CONNECT member stories Join CONNECT <!-- . ...

        News & Events

        Families flock outdoors to find COVID silver lining

        A Telethon Kids Institute study which looked at how Western Australian families coped with COVID-19 restrictions has shown many parents managed to find the silver lining in WA’s lockdown last year. ...

        News & Events

        Celebrating 25 years

        As our Founding Director Fiona Stanley puts it, The Telethon Kids Institute was formed on a "wing and a prayer". ...

        Research

        Developing sensitive endpoints for respiratory disease progression in children with neuromuscular disease

        We hope that through earlier diagnosis and treatment of muscle weakness during sleep, we can prevent future lung failure in children with neuromuscular disorders. ...

        Research

        Rett Syndrome Behaviour Questionnaire in Children and Adults With Rett Syndrome: Psychometric Characterization and Revised Factor Structure

        Rett syndrome (RTT) is a severe neurodevelopmental disorder associated with multiple neurobehavioral abnormalities. The Rett Syndrome Behaviour Questionnaire (RSBQ) was developed for pediatric RTT observational studies. Because its application has expanded to adult and interventional studies, we evaluated the RSBQ's psychometric properties in six pediatric (n = 323) and five adult (n = 309) datasets. ...

        Research

        Physical activity participation among children diagnosed with mental health disorders: A qualitative analysis of children’s and their guardian’s perspectives

        Children with mental health disorders have lower physical activity levels compared to their peers; however, minimal research has been conducted to date to understand their unique experiences of physical activity. We sought to better understand these experiences, along with contributing factors, through interviews with children with mental health disorders and their parents/guardians. ...

        Research

        Oral health care and service utilisation in individuals with Rett syndrome: an international cross-sectional study

        There is a dearth of literature available on the comparative oral health status of those with Rett syndrome (RTT) despite diurnal bruxism being a supportive diagnostic criterion for the disorder. This study was designed to investigate the dental experiences of individuals with RTT in terms of perceived at-home and professional dental care. ...

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