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        Research

        Involving consumers and the community in the development of a diagnostic instrument for fetal alcohol spectrum disorders in Australia

        Australia's commitment to consumer and community participation in health and medical research has grown over the past decade. ...

        Who is involved

        Developmental Pathways Project Governance Consumer and Community Participation Investigators The DPP adopts a governance structure that ensures ...

        Research

        Identifying the asthma research priorities of people with asthma, their carers and other stakeholders

        People living with asthma, their carers, clinicians and policymakers are the end-users of research and need research that address their individual healthcare needs. We aimed to understand the research priorities of end-users of asthma research. ...

        Participating Sites and Investigators

        Trial Steering Group Study Sites and Investigators Prof Jane Pillow Telethon Kids Institute and The University of Western Australia Prof Rod Hunt ...

        Research

        Experiences of Caregivers and At-Risk Children Enrolled in a Prospective Pregnancy-Birth Cohort Study into the Causes of Type 1 Diabetes: The ENDIA Study

        We sought research experiences of caregivers and their children were enrolled in the Environmental Determinants of Islet Autoimmunity (ENDIA) study. ...

        News & Events

        Document Review - We need your help

        Want a chance to help ensure documents produced by the PCH Diabetes Clinic are relevant and usable for children and families? This is your chance! ...

        The Western Australian Paediatric Bronchiectasis Program

        Western Australian Paediatric Bronchiectasis Cohort Study Community involvement Discover. Prevent. Cure. Lung Function Testing for healthy children ...

        News & Events

        JDRF Type One Summit

        The Rio Tinto Children's Diabetes Centre were invited to attend this year's JDRF Type One Summit in Sydney where the T1D community came together to "share knowledge and gain strength and inspiration from others in the T1D community - JDRF Australia" ...

        Scientific Advisory Committee

        Chief Investigators Scientific Advisors Consumer Representatives Administration Officer Discover. Prevent. Cure. Stephen Stick Anthony Kicic Luke ...

        Research

        Participant and caregiver perspectives on health feedback from a healthy lifestyle check

        The usual output following health consultations from paediatric services is a clinical letter to the referring professional or primary care provider, with a copy sent to the patient's caregiver. There is little research on how patients and caregivers perceive the letter content. ...

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