The aim of this project was to identify the top 10 priorities for childhood chronic conditions and disability (CCD) research from the perspectives of children and young people with lived experience, their parents and caregivers and the professionals who work with them. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• April 2023

Explored Youth with Neuromuscular Disorders perceptions of health, health behaviors and healthcare engagement ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2016
• October 2016

Our objective is to synthesize the best available evidence to determine the incidence and prevalence of falls in intellectually disabled adults in the community ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• July 2017

The Royal Commission into Institutional Responses to Child Sexual Abuse commissioned the Telethon Kids Institute to collaborate on a report ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• July 2017

For most individuals, there is initial developmental progress followed by regression at around 6–30 months. The classic signs of RTT then become apparent. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• September 2017

Caregivers play a crucial role in supporting the development of their children's emotion regulation. This study validated the Parental Assistance with Child Emotion Regulation (PACER) Questionnaire in a sample of 491 caregivers of young children ≤ 5 years. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• March 2022

Mainstream Australian mental health services are failing Aboriginal young people. Despite investing resources, improvements in well-being have not materialised. Culturally and age appropriate ways of working are needed to improve service access and responsiveness. This Aboriginal-led study brings Aboriginal Elders, young people and youth mental health service staff together to build relationships to co-design service models and evaluation tools. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• May 2021

There is an urgent need to develop high-quality falls prevention services for older adults with intellectual disability ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2020
• May 2020

Unmet language and literacy needs are common among young people who are involved with youth justice systems. However, there is limited research regarding the functional text-level language skills of this population with regard to narrative macrostructure (story grammar) and microstructure (semantics and syntax) elements. In this study, we examined macrostructure and microstructure elements in the oral and written narrative texts of 24 adolescent students of a youth detention centre. The students, who were aged 14- to 17- years, were all speakers of Standard Australian English, and 11 (46%) students met criteria for language disorder (LD). ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• February 2021

Penelope Jacinta Meet the researchers Strauss Freeman Can young people experiencing homelessness be part of the solution in suicide prevention? That ...

• 1. Telethon Kids Institute
• Our research
• Research Impact
• 2020
• In the pipeline