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        News & Events

        Thinking big to tackle kids’ brain development

        If there’s one thing modern researchers and health professionals now understand, it’s that for so many diseases and conditions affecting children and adolescents, early intervention is crucial. ...

        News & Events

        Back to school anxiety: How to help your child transition into the new school year

        As we count down to the end of the long summer holidays, it’s natural for children to feel anxious about what the new school year will bring. ...

        Be involved

        Join us! Get involved with Telethon Kids through providing a donation, volunteering your time, participating in important research, or with a professional commitment to the institute. ...

        News & Events

        Crucial advancement in the treatment of childhood sarcoma

        Cure Cancer and Telethon Kids Institute researcher Dr Ben Wylie announced new potential treatment in time for Childhood Sarcoma Awareness month. Dr Wylie and his team have developed a biodegradable gel that surgeons can apply locally during cancer removal surgery on children with sarcoma. ...

        News & Events

        New eczema storybook to promote healthy skin

        A children’s book – written by community, for community – has been launched in Western Australia’s south-west to help children and families understand more about one of the most common inflammatory skin conditions in children.  ...

        Research

        Application of Population-Based Linked Data to the Study of Intellectual Disability and Autism

        Data linkage is the bringing together of specific datasets from different sources using demographic information on individuals within a population. ...

        Research

        Implementing Telehealth support to increase physical activity in girls and women with Rett syndrome

        Helen Jenny Leonard Downs HM JA MBChB MPH BApplSci (physio) MSc PhD Principal Research Fellow Program Head, Development and Disability +61 419 956 ...

        Research

        Parent and therapist perspectives on "uptime" activities and participation in Rett syndrome

        People with a disability may spend more time sitting and lying (“downtime”) and less time standing and walking (“uptime”). Caregivers and therapists supporting individuals with Rett syndrome were surveyed, aiming to gather insights on how to support participation in “uptime” activities. ...

        Research

        Enablers and barriers in dental attendance in Rett syndrome: an international observational study

        Intellectual and developmental disabilities are heterogeneous in aetiology and presentation, and one cannot make assumptions about the oral health barriers of those with Rett syndrome (RTT) based on findings from generic studies. This study investigated caregivers' perceptions regarding access to dental care for those with RTT, and associations of dental treatments received by those with RTT with their caregivers' perceived value of oral health and perception of their own as well as their daughter's dental anxiety. ...

        Research

        Aspects of speech-language abilities are influenced by MECP2 mutation type in girls with Rett syndrome

        This study investigates relationships between methyl-CpG-binding protein 2 gene (MECP2) mutation type and speech-language abilities in girls with Rett syndrome. ...

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