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        Research

        Systematic Review and Meta-analysis: Mental Health in Children

        The behavioral phenotype of neurogenetic disorders associated with intellectual disability often includes psychiatric comorbidity. The objectives of this systematic review and meta-analysis were to systematically review the prevalence of psychiatric disorders and symptoms in children and adolescents ...

        Research

        Survival of children and adolescents with intellectual disability following gastrostomy insertion

        Whilst gastrostomy insertion was associated with lower survival rates than children without gastrostomy, survival improved with time ...

        Research

        Risk of Hospitalizations Following Gastrostomy in Children with Intellectual Disability

        Gastrostomy was associated with health benefits including reduced all-cause and epilepsy hospitalizations, but was not protective against acute LRTI ...

        Research

        Modifiable child and caregiver factors that influence community participation among children with Down syndrome

        To investigate modifiable child and caregiver factors influencing community participation among children with Down syndrome. ...

        Research

        Twenty years of surveillance in Rett syndrome: what does this tell us?

        This study aimed to describe overall survival and adult health in those with Rett syndrome. ...

        Research

        Adapting a measure of gross motor skills for individuals with CDKL5 deficiency disorder: A psychometric study

        Validated measures capable of demonstrating meaningful interventional change in the CDKL5 deficiency disorder (CDD) are lacking. The study objective was to modify the Rett Syndrome Gross Motor Scale (RSGMS) and evaluate its psychometric properties for individuals with CDD. ...

        News & Events

        $12 million grant puts WA research team in the hot seat to help wipe out malaria forever

        A world-leading research team built to tackle malaria has relocated from Oxford University to Western Australia to take advantage of the state’s growing big data talent pool. ...

        News & Events

        Execution of Licence Agreement with Telethon Kids Institute and Erasmus University Medical Centre

        Resonance Health Ltd is pleased to announce that it has entered into a licence agreement with the Telethon Kids Institute and the Erasmus University Medical Centre. ...

        News & Events

        Spike in Aboriginal child removals sparks call for urgent action to end cycle of trauma

        A study confirming Aboriginal children are now 10 times more likely than non-Aboriginal children to be placed in out-of-home care has prompted researchers to call for urgent action to prevent further intergenerational trauma. ...

        Research

        A systematic review of the biological, social, and environmental determinants of intellectual disability in children and adolescents

        This systematic review aimed to identify the most important social, environmental, biological, and/or genetic risk factors for intellectual disability. ...

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