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        Research

        Global Scales for Early Development: Piloting the Family Check Up Program

        Amy Jenny Helen Desiree Professor Catherine Finlay-Jones Downs Milroy Silva Elliott AFJ JA HM DS CE BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD ...

        Research

        Associations between the human immune system and gut microbiome with neurodevelopment in the first 5 years of life: A systematic scoping review

        The aim of this review was to map the literature assessing associations between maternal or infant immune or gut microbiome biomarkers and child neurodevelopmental outcomes within the first 5 years of life. We conducted a PRISMA-ScR compliant review of peer-reviewed, English-language journal articles. ...

        Research

        International CDKL5 Disorder Database

        Helen Jenny Leonard Downs HM JA MBChB MPH BApplSci (physio) MSc PhD Principal Research Fellow Program Head, Development and Disability +61 419 956 ...

        Research

        Piloting a self-compassion program to promote physical and psychological wellbeing in youth with T1D

        Amy Keely Liz Megan Asha Finlay-Jones Bebbington Davis Ansell Parkinson AFJ KB EA MA AP BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) ...

        Research

        Content Validation of Clinician-Reported Items for a Severity Measure for CDKL5 Deficiency Disorder

        CDKL5 deficiency disorder (CDD) results in early-onset seizures and severe developmental impairments. A CDD clinical severity assessment (CCSA) was previously developed with clinician and parent-report items to capture information on a range of domains. ...

        Research

        Delivering Elder- and Community-Led Aboriginal Early Childhood Development Research: Lessons from the Ngulluk Koolunga Ngulluk Koort Project

        We describe the application of a participatory action research methodology that is grounded in Aboriginal worldviews ...

        Research

        Vagus nerve stimulation for the treatment of refractory epilepsy in the CDKL5 Deficiency Disorder

        Our study suggests that vagus nerve stimulation is a generally safe and effective adjunct treatment for CDKL5-associated epilepsy ...

        Research

        What effect does regular exercise have on oxidative stress in people with Down syndrome? A systematic review with meta-analyses

        There remains uncertainty about the effect of exercise on oxidative stress in people with Down syndrome ...

        Research

        Functional abilities in children and adults with the CDKL5 disorder

        Although abilities were markedly impaired for the majority with the CDKL5 disorder, some females and a few males had better functional abilities ...

        Research

        A qualitative investigation of recovery after femoral fracture in Rett syndrome

        Jenny Helen Downs Leonard JA HM BApplSci (physio) MSc PhD MBChB MPH Program Head, Development and Disability Principal Research Fellow 08 6319 1763 ...

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