The goal of a clinical quality registry is to deliver immediate gains in survival and quality of life by delivering timely feedback to practitioners, thereby ensuring every patient receives the best existing treatment. We are developing an Australian Brain Cancer Registry (ABCR) to identify, describe, and measure the impact of the variation and gaps in brain cancer care from the time of diagnosis to the end of life. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• August 2021

The induction of DNA damage has been employed as an anticancer strategy for more than 100years, first starting with the use of radiation to treat stomach cancer followed by the first uses of DNA-damaging chemotherapy to treat childhood leukemia. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• January 2022

A higher incidence of pediatric intracranial germ cell tumors (iGCTs) in Asian countries compared with Western countries has been reported. In Malaysia, the literature regarding pediatric iGCTs have been nonexistent. The aim of this study was to review the management, survival, and long-term outcomes of pediatric iGCTs at a single tertiary center in Malaysia. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• October 2021

This study defines PFS and OS, and is the first describe post-progression survival in a large cohort of children with DIPG. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• September 2017

In this. i study the MTD and RP2D, safety, PK, and preliminary activity of single-agent ribociclib were investigated in patients with neuroblastoma. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• May 2017

This cohort study provides new evidence of a disparity between the proportion of the population with rare diseases and their combined health-system costs ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• May 2017

Parent–child book reading interventions alone are unlikely to meet needs of children and families for whom the absence of reading is psychosocial risk factor ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2016
• November 2016

The methylation variation in the promoter region of CD14 gene did not explain the asthma and allergy contrast between Finnish and Russian Karelian children ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2016
• November 2016

Researchers conducting program evaluations in other contexts are advised to consider testing for this potential source of bias in their studies ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2016
• January 2016

The purpose of this article is to highlight emerging evidence for existing allergy prevention guidelines regarding potential benefits of supporting early... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2015
• August 2015