This study used qualitative methods to explore how adolescents with Duchenne muscular dystrophy used a powered wheelchair standing device in their daily lives ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• March 2019

There is no data exclusively on the relationship between health-related quality-of-life (HRQOL) and lung disease severity in early school-aged children with cystic fibrosis (CF). Using data from the Australian Respiratory Early Surveillance Team for Cystic Fibrosis (AREST CF) we assessed the relationships between HRQOL, lung function and structure. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• November 2021

The clinical understanding of the CDKL5 disorder remains limited, with most information being derived from small patient groups seen at individual centres. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2013
• March 2013

Pulmonary exacerbations in cystic fibrosis are characterized by airway inflammation and may cause irreversible lung damage. Early identification of such exacerbations may facilitate early initiation of treatment, thereby potentially reducing long-term morbidity. Research question: Is it possible to predict pulmonary exacerbations in children with cystic fibrosis, using inflammatory markers obtained from BAL fluid? ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2020
• December 2020

Vincent Amy Bec Mancini Finlay-Jones Young VOM AFJ BY PhD (Clinical Psychology) BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) BSc ...

• 1. Telethon Kids Institute
• Projects

Growing up poor is about more than just the size of your bank account. Read the new CoLab Impact of Poverty Evidence Report. ...

• 1. Telethon Kids Institute
• News & Events
• News & Events at Telethon Kids
• 2018
• March

A minority of 4- to 17-year-olds with ADHD and major depressive disorder were being treated with stimulant or antidepressant medication ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• March 2017

Charlotte Allan  When Perth mum Lacy Swan’s daughter Charlotte failed the newborn hearing test at 3 days of age, the medical team explained it could ...

• 1. Telethon Kids Institute
• Our research
• Research Impact
• 2022
• Collaboration

There is scant literature about the management of stillbirth and the subsequent risk of severe maternal morbidity (SMM). We aimed to assess the risk of SMM associated with stillbirths compared with live births and whether this differed by the presence of maternal comorbidities. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• September 2022

Environmental exposure to phthalates and bisphenol A (BPA), chemicals used in the production of plastics, may increase risk for asthma and allergies. However, little is known about the long-term effects of early life exposure to these compounds. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• October 2022