Pulmonary exacerbations in cystic fibrosis are characterized by airway inflammation and may cause irreversible lung damage. Early identification of such exacerbations may facilitate early initiation of treatment, thereby potentially reducing long-term morbidity. Research question: Is it possible to predict pulmonary exacerbations in children with cystic fibrosis, using inflammatory markers obtained from BAL fluid? ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2020
• December 2020

We examined the human toll and subsequent humanitarian crisis resulting from the Russian invasion of Ukraine, which began on 24 February 2022. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• September 2022

Structural lung changes seen on computed tomography scans in persons with primary ciliary dyskinesia are currently described using cystic fibrosis derived scoring systems. Recent work has shown structural changes and frequencies that are unique to PCD, indicating the need for a unique PCD-derived scoring system. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• October 2023

To determine the frequency of protracted bacterial bronchitis (PBB) in children referred to tertiary care with chronic cough and describe management prior to referral. A retrospective cohort study of all new patients with a history of ≥4 weeks of cough seen at the only tertiary paediatric outpatient respiratory service in Western Australia. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• August 2021

Research is needed to determine best practice for genomic testing in the context of child interstitial or diffuse lung disease. We explored parent's and child's health-related quality of life, parents' perceived understanding of a genomic testing study, satisfaction with information and the study and decisional regret to undertake genomic testing. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• February 2022

Comparable survey data on Indigenous and non-Indigenous Australians are highly sought after by policymakers to inform policies aimed at closing ethnic... ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2015
• June 2015

Carrington Steve Shepherd Zubrick CCJ SR PhD FASSA, FAAMHS, MSc AM PhD Honorary Research Associate Honorary Emeritus Research Fellow 08 6319 1409 ...

• Telethon Kids Institute
• Projects
• The ARC Centre of Excellence for Children and Families over the Life Course

There is a global trend towards place-based initiatives (PBIs) to break the cycle of disadvantage and promote positive child development. Co-location is a common element of these initiatives and is intended to deliver more coordinated services for families of young children. This paper examines how co-locating early childhood services (ECS) from health and education in Child and Family Centres (CFCs) has impacted collaboration between services. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2020
• April 2020

Stephen André Stick Schultz SM AS MB BChir PhD MRCP FRACP MBChB, PhD, FRACP Head, P4 Respiratory Health for Kids Program Head, Respiratory Health RFA ...

• Telethon Kids Institute
• Projects

Cyber Friendly Schools program was associated with significantly greater declines in the odds of involvement in cyber-victimization and perpetration ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2016
• March 2016