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        The range of expression of symptoms in girls and women with Rett syndrome

        Article title Colvin, L., Fyfe, S., Leonard, S., Schiavello, T., Ellaway, C., De Klerk, N., Christodoulou, J., Msall, M., & Leonard, H. (2003). ...

        The diagnosis of autism in a female: could it be Rett syndrome?

        Article Title Young, DJ, Bebbington, A, Anderson, A, Ravine, D, Ellaway, C, Kulkarni, A, de Klerk, N, Kaufmann, WE & Leonard, H 2008. The diagnosis ...

        The Natural History of Scoliosis in Females with Rett Syndrome

        Article title Downs J, Torode I, Wong K, Ellaway C, Elliott EJ, Christodoulou J, Jacoby P, Thompson MR, Izatt MT, Askin GN, McPhee BI, Bridge C, ...

        Family satisfaction with spinal fusion

        Article title Marr, C., Leonard, H., Torode, I., & Downs, J. (2015). Spinal fusion in girls with Rett syndrome: Family experiences and postoperative ...

        Predictors of seizure onset in Rett syndrome

        Article title Jian L, Nagarajan L, de Klerk N, Ravine D, Bower C, Anderson A, Williamson S, Christodoulou J, Leonard H. Predictors of seizure onset ...

        Guidelines, reports and books

        Contact Us To find out any more information about how you can be involved, don't hesitate to contact us. Email: Helen.Leonard@telethonkids.org.au  ...

        Consumer reference group

        Contact Us To find out any more information about how you can be involved, don't hesitate to contact us. Email: Helen.Leonard@telethonkids.org.au  ...

        News and events

        Featured News Contact Us Contact Us Contact Us Contact Us Contact Us Contact Us Contact Us Contact Us Contact Us Contact Us Contact Us In the media ...

        News & Events

        HBF Run for a Reason 2014

        On Sunday May 25th, the 'I love someone with Rett syndrome' team participated in the annual HBF Run for a Reason. ...

        News & Events

        "You can't stop loving them" - a grandmother's story about her granddaughter who has Rett syndrome

        You can't stop loving them: the gift of a grandchild can sometimes be painful, writes Wendy Macklin. ...

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