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        Wal-yan respiratory researchers head to Milan to participate in international congress

        The Wal-yan Respiratory Research Centre is proud to have a team of researchers taking part in, and contributing to, the outstanding scientific programme of the European Respiratory Society International Congress, taking place in Milan. ...

        Research

        Precision pathways for young children at risk of Neurodevelopmental Disorders: Early identification and adaptive intervention starting from the prenatal period

        Amy Andrew Carol Deborah Gail Helen Jenny Kandice Martyn Finlay-Jones Whitehouse Watch and listen to Andrew Bower Strickland Alvares Leonard Downs ...

        Research

        Associations Between Hyperphagia, Symptoms of Sleep Breathing Disorder, Behaviour Difficulties and Caregiver Well-Being in Prader-Willi Syndrome: A Preliminary Study

        Prader-Willi syndrome (PWS) is a rare genetic disorder characterised by neurodevelopmental delays, hyperphagia, difficulties with social communication and challenging behaviours. Individuals require intensive supervision from caregivers which may negatively affect caregiver quality of life. This study used data collected in the Australasian PWS Registry to evaluate associations between child behaviours and caregiver mental well-being. ...

        Research

        The Wellbeing and Engagement Collection (WEC): Promoting the importance of students’ wellbeing and mental health in schools

        Tess Mary Alanna Neida Zara Amy Mailing list media enquiries Gregory Brushe Sincovich Sechague Monroy Boulton Finlay-Jones Be Inspired Media Contacts ...

        Research

        Developing sensitive endpoints for respiratory disease progression in children with neuromuscular disease

        We hope that through earlier diagnosis and treatment of muscle weakness during sleep, we can prevent future lung failure in children with neuromuscular disorders. ...

        BREATH (Building Respiratory Equity for Aboriginal and Torres Strait Islander Health)

        Our team aims to optimise lung health early in life to ensure the best possible health outcomes later in life. ...

        Cerebral Palsy Respiratory Health

        Determine your risk WA Health Excellence Awards 2023 CP Respiratory Checklist About the Wal-yan Respiratory Research Centre The Cerebral Palsy ...

        Research

        Rett Syndrome Behaviour Questionnaire in Children and Adults With Rett Syndrome: Psychometric Characterization and Revised Factor Structure

        Rett syndrome (RTT) is a severe neurodevelopmental disorder associated with multiple neurobehavioral abnormalities. The Rett Syndrome Behaviour Questionnaire (RSBQ) was developed for pediatric RTT observational studies. Because its application has expanded to adult and interventional studies, we evaluated the RSBQ's psychometric properties in six pediatric (n = 323) and five adult (n = 309) datasets. ...

        Research

        Oral health care and service utilisation in individuals with Rett syndrome: an international cross-sectional study

        There is a dearth of literature available on the comparative oral health status of those with Rett syndrome (RTT) despite diurnal bruxism being a supportive diagnostic criterion for the disorder. This study was designed to investigate the dental experiences of individuals with RTT in terms of perceived at-home and professional dental care. ...

        Research

        Management of oral and dental problems in Rett syndrome: a narrative review of the literature

        Review of the available dental literature on assessment and management of the oral manifestations of Rett syndrome ...

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