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        Research outputs

         Work in progress: updated 24 July 2019  This web page is currently being developed to provide public access to the DPP's research publications. If ' ...

        Research

        Effect of sitting posture on development of scoliosis in duchenne muscular dystrophy cases

        This study assessed the contribution of physical factors including lumbar posture to scoliosis in non-ambulatory youth with DMD in Nepal. ...

        Research

        How Well Does the EQ-5D-Y-5L Describe Children With Intellectual Disability?: “There's a Lot More to My Child Than That She Can't Wash or Dress Herself.”

        The EQ-5D-5L is a generic health utility instrument for measuring health-related quality of life (HRQoL), with self-report and proxy report versions for children (EQ-5D-Y-5L). Children with intellectual disability (ID) are a heterogeneous population whose impairments and comorbidities place them at risk of poor HRQoL. This study aimed to describe the content validity and suitability for children with ID of a proxy report version of the EQ-5D-Y-5L as seen by their caregivers. ...

        Research

        Sleep-disordered breathing in Australian children with Prader-Willi syndrome following initiation of growth hormone therapy

        In children with Prader-Willi syndrome (PWS), growth hormone (GH) improves height and body composition; however, may be associated with worsening sleep-disordered breathing (SDB). Some studies have reported less SDB after GH initiation, but follow-up with polysomnography is still advised in most clinical guidelines. ...

        News & Events

        WA Child Research Fund grants boost research for premmies, kids with cancer and rare diseases

        Telethon Kids Institute researchers have been awarded 12 of 16 grants under the latest round of funding from the WA Child Research Fund ...

        News & Events

        Telethon Kids researchers awarded Raine Medical Research Foundation funding

        Congratulations to Dr Gail Alvares and Dr Rachel Foong, who have been awarded funding from the Raine Medical Research Foundation. ...

        Research

        Developmental Pathways in WA Children Project (Developmental Pathways Project)

        Rebecca Fiona Melissa Helen Steve Desiree Glauert Stanley O'Donnell Leonard Zubrick Silva RA FJ M HM SR DS BPsych (Hons) PhD FAA FASSA MSc MD FFPHM ...

        Research

        Healthway Kimberly Compassion

        Amy Bep Finlay-Jones Uink AFJ BU BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) BPsych(Hons.), MAppPsy(Clinical), PhD Head, Early ...

        Research

        Development of Resources for Schools – Responding to and Planning for Children with Complex and Challenging Behaviours

        Yasmin Lizzie Harman-Smith Button YHS LB BA, BHlthSc(Hons), PhD BPsych (Hons) Head, Early Years Systems Evidence; Head, Tenders Support Unit ...

        News & Events

        International award for Rett syndrome research

        A Perth medical researcher responsible for major advancements in the understanding of the neurological disorder Rett syndrome has had her efforts recognised ...

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