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        Research

        Does gastrostomy improve the lives of children with severe disability and their families?

        Emma Helen Jenny Peter Glasson Leonard Downs Jacoby EJ HM JA PJ BPsych BSc (Hons) PhD MBChB MPH BApplSci (physio) MSc PhD BA (Hons) MSc Senior ...

        Sibling/Parent Research Advisor

        ...

        Research

        Towards evidence based care for Rett syndrome: a research model to inform management of rare disorders

        Helen Jenny Leonard Downs HM JA MBChB MPH BApplSci (physio) MSc PhD Principal Research Fellow Program Head, Development and Disability +61 419 956 ...

        Research

        New Opportunities for Evidence in Fetal Alcohol Spectrum Disorder

        Recent research, using objective 3-dimensional facial imaging, has found differences between the facial shape of individuals with FAS and the facial shape of individuals without FAS or with partial FAS ...

        Research

        Somatosensory discrimination intervention improves body position sense and motor performance in children with hemiplegic cerebral palsy

        The intervention group improved in goal performance, proprioception, and bimanual hand use and maintained improvement at 6-mo follow-up. ...

        Research

        Health care utilization and costs for children and adults with duchenne muscular dystrophy

        The annual economic cost of DMD was found to be high, reflecting a significant socioeconomic burden, especially in boys who reach adulthood ...

        Research

        Health of mothers of children with intellectual disability or autism spectrum disorder: a review of the literature

        The deficits associated with intellectual disability (ID) and autism spectrum disorder (ASD)place a burden on their co-residing families which may impact... ...

        Research

        "The problem with running"-Comparing the propulsion strategy of children with Developmental Coordination Disorder and typically developing children

        This study compared strategies of propulsion and power generation at the ankle during late stance/early swing in both walking and running in children with... ...

        Research

        Parental perspectives on the communication abilities of their daughters with Rett syndrome

        This study describes, from the perspective of parents, how females with Rett syndrome communicate in everyday life and the barriers and facilitators to... ...

        Research

        Role of public and private funding in the rising caesarean section rate: A cohort study

        Our results indicate that an increase in the prelabour caesarean delivery rate for private patients in private hospitals has been driving the increase in the... ...

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