A consumer panel on medication safety and chronic illness in seniors (aged 65+ years) ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2011
• October 2011

Most asthmatics would prefer workplaces, healthcare facilities, and environments that are fragrance-free, which could help reduce adverse effects ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2018
• January 2018

Consumer involvement in clinical research is an essential component of a comprehensive response during emergent health challenges. During the COVID-19 pandemic, the moderation of research policies and regulation to facilitate research may raise ethical issues. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2020
• December 2020

Consumer-driven research is increasingly being prioritized. Aim: Our aim was to partner with consumers to identify the top 10 research priorities for pediatric anesthesia and perioperative medicine. The ACORN (Anesthesia Consumer Research Network) was formed to collaborate with children and families across Australia. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• September 2022

Citation: McKenzie A. Principles for consumer involvement in health and medical research. Respirology. 2023 ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• February 2023

The objective of this tudy was to collaborate with consumer and community representatives in the Alcohol and Pregnancy Project from 2006-2008 ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2011
• May 2011

This study aimed to summarize the attributes that have been examined in existing peer-reviewed studies of Australian consumer nutrition environments ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2018
• May 2018

Francis Steve Sarah Mitrou Zubrick Johnson FG SR SJ BEc FASSA, FAAMHS, MSc AM PhD BA, PostGradDip; PhD Program Head, Population Health, and Team Head, Human Development and Community Wellbeing Honorary Emeritus Research Fellow Senior Research Fellow ...

• Telethon Kids Institute
• Projects
• The ARC Centre of Excellence for Children and Families over the Life Course

For decades, the research community has called for participant information sheets/consent forms (PICFs) to be improved. Recommendations include simplifying content, reducing length, presenting information in layers and using multimedia. However, there are relatively few studies that have evaluated health consumers' (patients/carers) perspectives on the type and organisation of information, and the level of detail to be included in a PICF to optimise an informed decision to enter a trial. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• December 2022

This study tested a new program for helping smokers with severe mental illness to reduce their tobacco use, together with determining the feasibility of such research in community mental health settings in Australia. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2020
• October 2020

The effect that attending a consumer and community participation had on their awareness of and attitudes to consumer and community involvement ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2016
• January 2016

Family-based lifestyle interventions for children/adolescents with severe levels of obesity are numerous, but evidence indicates programs fail to elicit short- or longer-term weight loss outcomes. Families with lived experience can provide valuable insight as we strive to improve outcomes from programs. Our aim was to explore elements that families desired in a program designed to treat severe levels of obesity in young people. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• October 2023