Influenza diagnosis codes had high specificity (98.6%) and modest positive predictive value (PPV; 84.1%) and sensitivity (86.1%) for a laboratory-confirmed... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2013
• July 2013

Chris Deborah Peter Tanisha Greta Karina Brennan-Jones Lehmann Richmond Cayley Bernabei Tao C D PC TC GB KT PhD AO, MBBS, MSc MBBS MRCP(UK) FRACP BBiomed (Hons) BSc B.SpLPath&Aud, MClincAud, PhD Head, Ear Health Honorary Emeritus Fellow Head, ...

• 1. Telethon Kids Institute
• Projects

Validated measures capable of demonstrating meaningful interventional change in the CDKL5 deficiency disorder (CDD) are lacking. The study objective was to modify the Rett Syndrome Gross Motor Scale (RSGMS) and evaluate its psychometric properties for individuals with CDD. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2024
• January 2024

Parent observations provide an initial framework for understanding quality of life in autism spectrum disorder ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• January 2019

We assessed the impact of PCV on all-cause and pathogen-specific pneumonia hospitalizations in Western Australian (WA) children aged 16 years. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2018
• March 2018

We investigated parental observations to identify QOL domains in children with Down Syndrome and determined whether domains differed between children and teens. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• February 2017

Many children with intellectual disability live with medical comorbidities. This study examined the impacts of comorbidities on quality of life (QOL) of children with intellectual disabilities and whether impacts varied with caregiver perceptions that medical needs had been met. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• April 2021

Francis Steve Helen Liz Peter Glenn Alex Asha Matt Kathryn Bep Pete Jenny Mitrou Zubrick Milroy Davis Richmond Pearson Brown Bowen Cooper Ramsey Uink Azzopardi Downs Videos FG SR HM EA PC G AB AC MC KR BU PA JA WARNING: Aboriginal and Torres Strait ...

• 1. Telethon Kids Institute
• Projects

According to the Young Minds Matter study, mental health disorders such as anxiety and depression are experienced by approximately one in seven or 560,000 young people in Australia. These disorders can often have a significant impact on children’s learning and development and on family life. ...

• 1. Telethon Kids Institute
• Our research
• Research Topics

A severe neurodevelopmental disorder mostly affecting girls. ...

• 1. Telethon Kids Institute
• Our research
• Research Topics

Gastrostomy is increasingly used in multiple neurological conditions associated with intellectual disability, with no apparent accessibility barriers ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• March 2019

Chris Peter Deborah Valerie Karina Natasha Tamara Greta Kerryn Brennan-Jones Richmond Lehmann Swift Tao Morrison Veselinovic Bernabei Gidgup C PC D VS KT NM TV GB KG PhD MBBS MRCP(UK) FRACP AO, MBBS, MSc B.SpLPath&Aud, MClincAud, PhD MClinAud BSc ...

• 1. Telethon Kids Institute
• Projects