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        Can positive mindsets be protective against stress and isolation experienced during the covid-19 pandemic? A mixed methods approach to understanding emotional health and wellbeing needs of perinatal women

        The aim of this study was to explore the relationship between emotional health and wellbeing and support needs of perinatal women during the COVID-19 pandemic, and to understand their experiences and need for support. This is a potentially vulnerable group and a critical developmental phase for women and infants. ...

        Research

        Content validation of the Quality of Life Inventory—Disability

        Satisfactory content validity is reported, where ongoing consumer feedback shaped the dataset from which the final items were selected ...

        Research

        TALK (Testosterone and Language in Kids) Study

        Andrew Chris Gail Susan Peter Whitehouse Watch and listen to Andrew Brennan-Jones Alvares Prescott Jacoby AJ C GA SL PJ PhD PhD PhD MBBS BMedSci PhD FRACP BA (Hons) MSc Angela Wright Bennett Professor of Autism Research at Telethon Kids and ...

        Research

        Vulnerable from the first breath - epithelial dysfunction and respiratory outcomes in children

        Anthony David Stephen Susan Kicic Martino Stick Prescott A DM SM SL BSc (Hons) PhD BSc PhD MB BChir PhD MRCP FRACP MBBS BMedSci PhD FRACP Rothwell Family Fellow; Head, Airway Epithelial Research Head, Clinical Epigenetics Head, P4 Respiratory Health ...

        Research

        STEPS - Equitable Approach to Early Self-Regulation Promotion

        Amy Helen Jenny Finlay-Jones Milroy Downs AFJ HM JA BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) MBBS; FRANZCP; CATCAP BApplSci (physio) MSc PhD Head, Early Neurodevelopment & Mental Health; Healthway WA Senior Research Fellow ...

        Research

        Multi-site validation of a suite of clinical outcome measures for clinical trial readiness in the CDKL5 Deficiency Disorder

        Helen Jenny Peter Leonard Downs Jacoby HM JA PJ MBChB MPH BApplSci (physio) MSc PhD BA (Hons) MSc Principal Research Fellow Program Head, Development and Disability Biostatistician +61 419 956 946 08 6319 1763 helen.leonard@telethonkids.org.au ...

        Research

        Strengthening student social and emotional wellbeing and preventing bullying behaviours: Insights from 20 years of Friendly Schools research in Australian schools.

        Strong evidence supports our current understandings of student bullying behaviours and ways schools can prevent and respond effectively to bullying behaviour. In the late 1990’s, however, little was understood about the most effective ways to reduce bullying in Australian schools. In response to schools’ need for evidence-informed action, a pipeline of research called Friendly Schools was initiated in 1999 which for the past twenty years, has provided robust whole-school evidence-based knowledge and skills to support policy makers, school staff and other practitioners working in schools and families across Australia. ...

        Research

        Rett syndrome: establishing a novel outcome measure for walking activity in an era of clinical trials for rare disorders

        This study investigated the capacity of three accelerometer-type devices to measure walking activity in Rett syndrome ...

        Research

        Linking MECP2 and pain sensitivity: the example of Rett syndrome

        This study investigated the nature and prevalence of atypical pain responses in Rett syndrome and their relationships with specific MECP2 mutations. ...

        Research

        Stereotypical hand movements in 144 subjects with Rett syndrome from the population-based Australian database

        Stereotypic hand movements are a feature of Rett Syndrome but few studies have observed their nature systematically. ...

        Research

        Psychometric Properties of the EQ-5D-Y-5L for Children With Intellectual Disability

        The EQ-5D-Y-5L is a generic preference-based measure of health-related quality of life for children. This study aimed to describe the distributional properties, test-retest reliability, and convergent validity of the EQ-5D-Y-5L in children with intellectual disability (ID).  ...

        Research

        The impact of pandemic A(H1N1)pdm09 influenza and vaccine-associated adverse events on parental attitudes and influenza vaccine uptake in young children

        This paper reports on the shift in parental attitude to vaccination after 2010, due to an unprecedented increase in febrile reactions in children receiving... ...

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