Amy Keerthi Jenny Daniel Finlay-Jones Kottampally Downs Ta AFJ KK JA DT BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) Bsc (Hons), GradDipPsych(Adv) BApplSci (physio) MSc PhD BBiomedSc (Hons) Head, Early Neurodevelopment & Mental ...

• 1. Telethon Kids Institute
• Projects

We used population data on Western Australian singletons born from 1984 to 1999 (n = 398,353) to examine the sociodemographic characteristics of children... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2011
• March 2011

Adolescents with Type 1 diabetes (T1D) often need to undertake self-management tasks in public or disclose their diagnosis to others. Therefore, they may be subjected to negative reactions from the public, known as enacted stigma. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• August 2022

Prader-Willi syndrome (PWS) is a rare genetic disorder characterised by neurodevelopmental delays, hyperphagia, difficulties with social communication and challenging behaviours. Individuals require intensive supervision from caregivers which may negatively affect caregiver quality of life. This study used data collected in the Australasian PWS Registry to evaluate associations between child behaviours and caregiver mental well-being. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• September 2021

Despite the medical and surgical improvements of paediatric burn injuries, burn injuries can be a painful and traumatic experience for the child and their family. It is therefore important to explore the experiences of caregivers who support their child throughout the burn journey. Thus, the purpose of this study was to explore the traumatic nature of paediatric burns on the family from a caregiver's perspective. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• Jun 2023

Helen Alix Fiona Nicole Elmie Lisa Rigel Milroy Woolard Wood Wickens Janse Van Rensburg McGivern Paciente HM AW FW NW EJVR LM RP MBBS; FRANZCP; CATCAP BPsych (Hons), PhD BHlthSc (Hons) BA, BSc BA (Hons 1, Psych) MPH (Applied Public Health and Public ...

• 1. Telethon Kids Institute
• Projects

Families participating in the population-based and longitudinal Australian Rett Syndrome Database whose daughter had undergone spinal fusion provided data on... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2014
• April 2014

CDKL5 deficiency disorder (CDD) results in early-onset seizures and severe developmental impairments. A CDD clinical severity assessment (CCSA) was previously developed with clinician and parent-report items to capture information on a range of domains. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• August 2021

Gastrostomy assisted the management of feeding difficulties and poor weight gain, and was acceptable to families ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2014
• December 2014

This paper demonstrated that the evolution of sleep problems differed between subgroups of girls and women with Rett syndrome, in part explained by age and... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2014
• September 2014

An estimated half of all children with cerebral palsy also have comorbid intellectual disability, the domains of QOL for these children are not well understood ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• November 2017

Older maternal age is associated with depression, anxiety, and stress symptoms in young adult females ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2016
• January 2016