In the Australian disability context, the assessment of children with neurodevelopmental conditions’ functioning (across all domains) is of increasing importance, particularly since the introduction of the National Disability Insurance Scheme. Currently, there is wide variability across assessment of functioning practices, including the choice and use of published tools for assessment. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• September 2022

Some studies suggest an association between early exposure to anesthesia, surgery and long term developmental deficit, clinical phenotype of children is unknown ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• July 2017

This paper reports on data from the Western Australian Pregnancy Cohort (Raine) Study to examine whether exposure to anesthetics in children younger than 3... ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2014
• June 2014

We argue that population-based studies are critical to overcome the selection bias seen in many clinical samples and to identify true variability within a... ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2013
• January 2013

Slightly less than 1 h of general anaesthesia in early infancy does not alter neurodevelopmental outcome at age 5 years ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• February 2019

Children with neurodevelopmental disorders share common phenotypes, support needs and comorbidities. Such overlap suggests the value of transdiagnostic assessment pathways that contribute to knowledge about research and clinical needs of these children and their families. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• November 2021

We aimed to define the clinical and variant spectrum and to provide novel molecular insights into the DHX30-associated neurodevelopmental disorder. Clinical and genetic data from affected individuals were collected through Facebook-based family support group, GeneMatcher, and our network of collaborators. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• May 2021

Amy Andrew Carol Deborah Gail Helen Jenny Kandice Martyn Finlay-Jones Whitehouse Watch and listen to Andrew Bower Strickland Alvares Leonard Downs Varcin Symons AFJ AJ C DH GA HM JA KJ MS BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) ...

• Telethon Kids Institute
• Projects

Young people with neurodevelopmental disorders are overrepresented in the youth justice system and face many disadvantages due to their impairments. The current study investigated what factors predict and contribute to the behavior of youth justice professionals working in the Queensland (QLD) youth justice system, utilizing a behavior change wheel framework. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• January 2022

This chapter discusses the importance of investment in early life determinants of health to break the cycle of long-term disadvantage. This chapter addresses these issues while focussing on neurodevelopmental disorders and their related mental health concerns as the targets at the centre of a biopsychosocial transformation of the health system. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2020
• January 2020

Maternal milk feeding may have unique long-term neurodevelopmental benefits in very preterm infants. We examine the extent to which maternal milk feeding after very preterm birth is associated with cognitive, academic, and behavioral outcomes at school age. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• July 2022

In this article, we examine the utility of a transdiagnostic, dimensional approach to very early identification and intervention for infants at risk of neurodevelopmental disorders ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• June 2019