Using medical and other data from private citizens without obtaining the consent of those citizens has been a taboo of statisticians and of society ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2010
• May 2010

Rett syndrome (RTT) is an X linked neuro-developmental disorder affecting mostly girls. Mutations in the coding region of MECP2 are found in 80% of classic... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2006
• June 2006

The Advisory Council on the Prevention of Deaths of Children and Young People today officially released this report. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2006
• March 2006

Chris Brennan-Jones C PhD Head, Ear Health chris.brennan-jones@telethonkids.org.au Senior Research Fellow, Ear Health Associate Professor Chris Brennan-Jones is an audiologist and clinician scientist who leads the Ear Health team at Telethon Kids ...

• 1. Telethon Kids Institute
• Projects

Hayley Christian HC BSc (1st Class Hons), PhD W.Aust. Program Head, Healthy Behaviours and Environments; National Heart Foundation Future Leader Fellow 08 6319 1040 hayley.christian@telethonkids.org.au Program Head, Healthy Behaviours and ...

• 1. Telethon Kids Institute
• Projects

Robyn Johnston RJ BSc, Post Grad Dip, PhD Senior Research Officer robyn.johnston@telethonkids.org.au Senior Research Officer Robyn Johnston is a Health promotion researcher who works with young people, parents and community stakeholders to support ...

• 1. Telethon Kids Institute
• Projects

Tobias Jenny Strunk Mountain Other Investigators TS JM MD, PhD, FRACP MBA MClinEpi Head, Neonatal Health Program Manager, Neonatal Health / Protect Trial tobias.strunk@telethonkids.org.au Head, Neonatal Health Clinical Professor Tobias Strunk is a ...

• 1. Telethon Kids Institute
• Projects

Amy Finlay-Jones AFJ BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) Head, Early Neurodevelopment & Mental Health; Healthway WA Senior Research Fellow +61 8 6319 1808 amy.finlay-jones@telethonkids.org.au Head, Early Neurodevelopment & ...

• 1. Telethon Kids Institute
• Projects

Being physically active is critical for healthy ageing, yet many older people do not meet physical activity guidelines. The aim of this study was to test the relative effectiveness of five previously identified campaign slogans designed to encourage older people to be more physically active: 'Be active 30-60 minutes a day to stay fit and well'; 'Move more, live longer'; 'Stay fit to stay functional'; 'This is your time - enjoy being strong and active'; and 'Use it or lose it'. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• September 2023

The incidence of anaphylaxis is increasing globally in tandem with changing environmental and lifestyle factors. There is very limited data on very early childhood presentations. We aim to assess changes in rates, characteristics and management of infant anaphylaxis in a paediatric ED over a 15-year period. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• July 2023

Globally, non-communicable diseases (NCD) kill about 40 million people annually, with about three-quarters of the deaths occurring in low- and middle-income countries. This study was carried out to determine the patterns, trends, and causes of in-hospital non-communicable disease (NCD) and injury deaths in Tanzania from 2006-2015. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• July 2023

Early assessment and diagnosis of FASD are crucial in providing therapeutic interventions that aim to enhance meaningful participation and quality of life for individuals and their families, while reducing psychosocial difficulties that may arise during adolescence and adulthood. Individuals with lived experience of FASD have expertise based on their own lives and family needs. Their insights into the assessment and diagnostic process are valuable for improving service delivery and informing the provision of meaningful, person- and family-centered care. To date, reviews have focused broadly on the experiences of living with FASD. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• May 2023