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        253-264 of 390 results for 'rett syndrome'

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        Influence of the environment on participation in social roles for young adults with down syndrome

        The purpose of this study is to describe the social participation of young adults with Down syndrome and examine its relationship with the physical and... ...

        Research

        Day occupation is associated with psychopathology for adolescents and young adults with Down syndrome

        In comparison to those young adults attending open employment from 2009 to 2011, those attending day recreation programs were reported to experience... ...

        Research

        Does gastrostomy improve the lives of children with severe disability and their families?

        Emma Helen Jenny Peter Glasson Leonard Downs Jacoby EJ HM JA PJ BPsych BSc (Hons) PhD MBChB MPH BApplSci (physio) MSc PhD BA (Hons) MSc Senior Research Fellow Principal Research Fellow Program Head, Development and Disability Biostatistician +61 ...

        Research

        Are preterm birth and intra-uterine growth restriction more common in Western Australian children of immigrant backgrounds? A population based data linkage study

        Our findings illustrate the vulnerabilities of children born to foreign women from low and middle-income countries ...

        Research

        Exploring quality of life of children with cerebral palsy and intellectual disability: What are the important domains of life?

        An estimated half of all children with cerebral palsy also have comorbid intellectual disability, the domains of QOL for these children are not well understood ...

        Research

        Very Early Identification and Intervention for Infants at Risk of Neurodevelopmental Disorders: A Transdiagnostic Approach

        In this article, we examine the utility of a transdiagnostic, dimensional approach to very early identification and intervention for infants at risk of neurodevelopmental disorders ...

        Research

        Survival of children and adolescents with intellectual disability following gastrostomy insertion

        Whilst gastrostomy insertion was associated with lower survival rates than children without gastrostomy, survival improved with time ...

        Research

        Risk of Hospitalizations Following Gastrostomy in Children with Intellectual Disability

        Gastrostomy was associated with health benefits including reduced all-cause and epilepsy hospitalizations, but was not protective against acute LRTI ...

        Research

        Comorbidities and quality of life in children with intellectual disability

        Many children with intellectual disability live with medical comorbidities. This study examined the impacts of comorbidities on quality of life (QOL) of children with intellectual disabilities and whether impacts varied with caregiver perceptions that medical needs had been met. ...

        Research

        Parent-observed thematic data on quality of life in children with autism spectrum disorder

        Parent observations provide an initial framework for understanding quality of life in autism spectrum disorder ...

        Research

        Data Linkage: Canadian and Australian Perspectives on a Valuable Methodology for Intellectual and Developmental Disability Research

        Building data linkage capabilities, and how linked databases can be used to identify persons with IDD and used for population-based research ...

        Research

        The effect of functioning on Quality of Life Inventory-Disability measured quality of life is not mediated or moderated by parental psychological distress

        The measurement of quality of life (QOL) in children with intellectual disability often relies upon proxy report via caregivers. The current study investigated whether caregiver psychological distress mediates or moderates the effects of impairment on their ratings of QOL in children with intellectual disability. ...

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