Browse study websites

Discover. Prevent. Cure.

Menu Fundraise Donate

    Recommended pages

      Do you mean

        265-276 of 390 results for 'rett syndrome'

        Refine research

        Research

        Factors influencing participation in home, school, and community settings by children and adolescents with neuromuscular disorders: A qualitative descriptive study

        This study explored how children and adolescents with a neuromuscular disorder (NMD) and their parents experienced barriers and enablers to the child's participation. ...

        Research

        Comorbidities and quality of life in children with intellectual disability

        Many children with intellectual disability live with medical comorbidities. This study examined the impacts of comorbidities on quality of life (QOL) of children with intellectual disabilities and whether impacts varied with caregiver perceptions that medical needs had been met. ...

        Research

        Parent-observed thematic data on quality of life in children with autism spectrum disorder

        Parent observations provide an initial framework for understanding quality of life in autism spectrum disorder ...

        Research

        Content validation of the Quality of Life Inventory—Disability

        Satisfactory content validity is reported, where ongoing consumer feedback shaped the dataset from which the final items were selected ...

        Research

        The Brain Basis of Comorbidity in Neurodevelopmental Disorders

        This review discusses early brain development and the etiological factors that may give rise to atypical developmental trajectories, along with neuroimaging insights ...

        Research

        Onset of maternal psychiatric disorders after the birth of a child with intellectual disability: A retrospective cohort study

        Mothers of a child with intellectual disability (ID) have more psychiatric disorders after the birth of their child than other mothers. ...

        Research

        Patterns of depressive symptoms and social relating behaviors differ over time from other behavioral domains for young people with Down syndrome

        People with intellectual disabilities are at a higher risk for experiencing behavioral, emotional, and psychiatric problems in comparison with the general... ...

        Research

        To Feel Belonged: The Voices of Children and Youth with Disabilities on the Meaning of Wellbeing

        The aim of this paper was to describe the meaning of wellbeing for children and youth with disabilities from their perspective. ...

        Research

        The development, content and response process validation of a caregiver-reported severity measure for CDKL5 deficiency disorder

        CDKL5 Deficiency Disorder (CDD) is a severe X-linked developmental and epileptic encephalopathy. Existing developmental outcome measures have floor effects and cannot capture incremental changes in symptoms. We modified the caregiver portion of a CDD clinical severity assessment (CCSA) and assessed content and response-process validity.  ...

        Research

        The contributions of fetal growth restriction and gestational age to developmental outcomes at 12 months of age: A cohort study

        Developmental assessment of infants with fetal growth restriction was mostly comparable to those born without fetal growth restriction at 12 months ...

        Research

        Functioning, participation, and quality of life in children with intellectual disability: an observational study

        To investigate associations between functioning, community participation, and quality of life (QoL) and identify whether participation mediates the effects of functioning on QoL. ...

        Research

        Developing sensitive endpoints for respiratory disease progression in children with neuromuscular disease

        We hope that through earlier diagnosis and treatment of muscle weakness during sleep, we can prevent future lung failure in children with neuromuscular disorders. ...

        Page 23 of 33