Almost half of stillbirths could be potentially identified antenatally based on a combination of factors ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2020
• March 2020

To investigate quality of life (QOL) and psychosocial well-being in youth with neuromuscular disorders (NMDs) who are wheelchair users. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• May 2017

Ankle and hip power generation as a propulsion strategy during the late stance/early swing phases of walking and running in typically developing children ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2016
• December 2016

Building data linkage capabilities, and how linked databases can be used to identify persons with IDD and used for population-based research ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• October 2019

About 2 per cent of children are estimated to have an intellectual disability. The cause of the condition is unknown in at least 50 per cent of cases. ...

• 1. Telethon Kids Institute
• Our research
• Research Topics

Melissa Fiona Helen Rebecca Peter O'Donnell Stanley Leonard Glauert Jacoby M FJ HM RA PJ BPsych (Hons), MPsych, GradDip Ed, PhD FAA FASSA MSc MD FFPHM FAFPHM FRACP FRANZCOG HonDSc HonDUniv HonFRACGP HonMD HonFRCPCH HonLLB (honoris causa) MBChB MPH ...

• 1. Telethon Kids Institute
• Projects

Carol Helen Bower Leonard C HM MBBS MSc PhD FAFPHM DLSHTM FPHA MBChB MPH Senior Principal Research Fellow, Alcohol and Pregnancy & FASD Research; Director, FASD Research Australia CRE Principal Research Fellow 08 6319 1813 +61 419 956 946 ...

• 1. Telethon Kids Institute
• Projects

This study measured use and cost of health sector and related services in Rett syndrome and effects of socio-demographic, clinical severity and genetic... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2011
• January 2011

Children with complex needs and severe disability may undergo gastrostomy insertion to support feeding difficulties. Parent education programs are critical components of clinical care pathways but there is little information on parent-reported educational needs. This study describes the collaborative process that yielded a resource to assist parents considering gastrostomy tube placement for their children, and the evaluation of the resource.  ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• November 2023

The present estimates of relative recurrence risks for autism spectrum disorder and childhood autism will assist clinicians and families in understanding autism risk ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• September 2019

People with intellectual disability fall at a younger age compared with the broader community ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• December 2019

Synthesized findings demonstrate that people with intellectual disability, who live in community or residential settings, may fall more frequently, and at a younger age ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• March 2019