To investigate developmental trajectories in early childhood and predictors of class assignment. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• October 2022

Amy Keerthi Jenny Daniel Finlay-Jones Kottampally Downs Ta AFJ KK JA DT BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) Bsc (Hons), GradDipPsych(Adv) BApplSci (physio) MSc PhD BBiomedSc (Hons) Head, Early Neurodevelopment & Mental ...

• 1. Telethon Kids Institute
• Projects

Amy Finlay-Jones AFJ BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) Head, Early Neurodevelopment & Mental Health; Healthway WA Senior Research Fellow +61 8 6319 1808 amy.finlay-jones@telethonkids.org.au Head, Early Neurodevelopment & ...

• 1. Telethon Kids Institute
• Projects

Rett syndrome (RTT) is a genetically caused neurodevelopmental disorder associated with severe disability. We assessed the feasibility of a telehealth program supporting gross motor skills in RTT. Five girls with RTT were assessed and a home-based exercise program developed in response to functional goals. Families then participated in monthly Skype sessions for 6 months, guided by a physiotherapist to monitor progress and adjust the program as necessary. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• April 2021

A considerable health disparity exists between Aboriginal and non-Aboriginal Australians, including a higher incidence and severity of cardiovascular and... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2015
• April 2015

To examine the lived experiences of young people successfully managing life with ADHD and investigate the applicability of adult models of Recovery to these individuals. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• August 2022

The aim of this project was to identify the top 10 priorities for childhood chronic conditions and disability (CCD) research from the perspectives of children and young people with lived experience, their parents and caregivers and the professionals who work with them. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• April 2023

Carrington Shepherd CCJ PhD Honorary Research Associate Honorary Research Associate Areas of research expertise: Population health; Aboriginal and Torres Strait Islander health; Social inequalities in health; child mortality. Carrington is a Senior ...

• 1. Telethon Kids Institute
• Our research
• Early Environment
• Developmental Origins of Child Health
• Expired projects

Caregivers play a crucial role in supporting the development of their children's emotion regulation. This study validated the Parental Assistance with Child Emotion Regulation (PACER) Questionnaire in a sample of 491 caregivers of young children ≤ 5 years. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• March 2022

Use of patient-reported outcome measures in clinical settings facilitate the delivery of better health care to improve patient health outcomes. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• September 2022

Explored Youth with Neuromuscular Disorders perceptions of health, health behaviors and healthcare engagement ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2016
• October 2016

Our objective is to synthesize the best available evidence to determine the incidence and prevalence of falls in intellectually disabled adults in the community ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• July 2017