Social advantage may provide some protection for dental health in individuals with Rett syndrome ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2018
• November 2018

Attention to sleep hygiene remains an important management strategy for sleep problems in Rett syndrome ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2018
• July 2018

We investigated the effects of environmental enrichment on gross motor skills and blood BDNF levels in girls with Rett syndrome. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2018
• January 2018

We describe the choice-making abilities of girls and women with Rett syndrome. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2018
• March 2018

Investigate impacts on maternal health and family quality of life in families with a child with the CDKL5 disorder ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• January 2017

A number of themes emerged from the qualitative data which included parents' views and concerns about the capacity of their young adult to adapt and change to life in adulthood ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2016
• December 2016

Rett syndrome is a severe neurodevelopmental disorder mainly affecting females and scoliosis is a common co-morbidity. Spinal fusion may be recommended if... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2015
• February 2015

Fourteen of 74 Chinese families known to the International Rett Syndrome Phenotype Database participated in this qualitative study. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2012
• January 2012

Hayley Pete Trina Christian Gething Robinson HC PG TR BSc (1st Class Hons), PhD W.Aust. BSc, PostGrad Dip (Health Promotion) Program Head, Healthy Behaviours and Environments; National Heart Foundation Future Leader Fellow Program Head, Child Health ...

• 1. Telethon Kids Institute
• Projects

The U-PART intervention was found to be feasible and effective in the short term in girls and women with Rett Syndrome ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2020
• January 2020

Overlap between non-suicidal self-harm and suicidal ideation and behavior in young people with both symptom continuity and symptom duration implicated in this association ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• October 2017

This paper analyzes the effects of “shocks” to community-level unemployment expectations, induced by the Great Recession, on children’s mental well-being ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• February 2019