Long-term survival was lower for Aboriginal children with congenital heart defects ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2016
• December 2016

Mothers of children with autism without ID had increased risk of cancer, which may relate to common genetic pathways ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2016
• September 2016

The objective of this study is to compare the time trend of reported diagnoses of autism spectrum disorder, hyperkinetic disorder, Tourette's syndrome, and... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2015
• May 2015

More than 1 in 5 children experience neglect, exposing them to several adverse consequences. Children with intellectual disability experience additional neglect related challenges. Public perceptions significantly influence the identification, intervention, and prevention of child neglect.  ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• December 2023

An estimated half of all children with cerebral palsy also have comorbid intellectual disability, the domains of QOL for these children are not well understood ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• November 2017

Our findings illustrate the vulnerabilities of children born to foreign women from low and middle-income countries ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• August 2019

Carol Helen Bower Leonard C HM MBBS MSc PhD FAFPHM DLSHTM FPHA MBChB MPH Senior Principal Research Fellow, Alcohol and Pregnancy & FASD Research; Director, FASD Research Australia CRE Principal Research Fellow 08 6319 1813 +61 419 956 946 ...

• 1. Telethon Kids Institute
• Projects

This study measured use and cost of health sector and related services in Rett syndrome and effects of socio-demographic, clinical severity and genetic... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2011
• January 2011

Children with complex needs and severe disability may undergo gastrostomy insertion to support feeding difficulties. Parent education programs are critical components of clinical care pathways but there is little information on parent-reported educational needs. This study describes the collaborative process that yielded a resource to assist parents considering gastrostomy tube placement for their children, and the evaluation of the resource.  ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• November 2023

The present estimates of relative recurrence risks for autism spectrum disorder and childhood autism will assist clinicians and families in understanding autism risk ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• September 2019

People with intellectual disability fall at a younger age compared with the broader community ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• December 2019

Synthesized findings demonstrate that people with intellectual disability, who live in community or residential settings, may fall more frequently, and at a younger age ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• March 2019