CDKL5 deficiency disorder (CDD) results in early-onset epilepsy and lifelong cognitive and motor impairments. With no validated measure for communication in CDD, this study evaluated the psychometric properties of the Communication and Symbolic Behavior Scales-Developmental Profile Infant Toddler Checklist. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• May 2023

Family-based lifestyle interventions for children/adolescents with severe levels of obesity are numerous, but evidence indicates programs fail to elicit short- or longer-term weight loss outcomes. Families with lived experience can provide valuable insight as we strive to improve outcomes from programs. Our aim was to explore elements that families desired in a program designed to treat severe levels of obesity in young people. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• October 2023

Francis Steve Helen Liz Peter Glenn Alex Asha Matt Kathryn Bep Pete Jenny Mitrou Zubrick Milroy Davis Richmond Pearson Brown Bowen Cooper Ramsey Uink Azzopardi Downs Videos FG SR HM EA PC G AB AC MC KR BU PA JA WARNING: Aboriginal and Torres Strait ...

• 1. Telethon Kids Institute
• Projects

Rheumatic heart disease (RHD) is the most important cause of acquired cardiovascular disease in children and young adults. Virtually non-existent in most of Australia, it still predominantly affects Aboriginal communities. ...

• 1. Telethon Kids Institute
• Our research
• Research Topics

Asha Bernadette Jonathan Brad Janessa Hannah Ainslie Jacinta Eloise Alexandra Bowen Ricciardo Carapetis AM Farrant Pickering Thomas Poore Walton Delaney Whelan AC BR JR BM Dr HT AP JW ED AW BA MBBS DCH FRACP PhD GAICD OAM MBBS (hon) DCH FACD AM MBBS ...

• 1. Telethon Kids Institute
• Projects

Individuals with borderline personality disorder (BPD) are at a substantial risk of harm to themselves and others, experience high levels of functional impairment and typically are high users of tertiary healthcare to address their mental health concerns. As indicators for BPD typically emerge in adolescence, a day therapy service in Bentley, Western Australia, Touchstone Child and Adolescent Mental Health Service (CAMHS), was developed as an intensive intervention for adolescents with indicators for BPD and its associated symptomology. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• April 2023

The DETECT-Schools Study was launched in May 2020 as a partnership between the WA Government Departments of Education and Health with the Telethon Kids Institute.  ...

• 1. Telethon Kids Institute
• Projects

Food allergies have become more common in our community, with up to one in ten young children now affected. Reactions can range from mild rashes to life threatening anaphylaxis and breathing difficulties. The most common food allergies are to egg, peanut, tree nuts, cow’s milk, fish, shellfish, wheat and soy. ...

• 1. Telethon Kids Institute
• Our research
• Research Topics

Language is one of the most remarkable developmental accomplishments of early childhood. Language connects us with others and is an essential tool for literacy, education, employment and lifelong learning. ...

• 1. Telethon Kids Institute
• Our research
• Research Topics

The social media application TikTok allows users to view and upload short-form videos. Recent evidence suggests it has significant potential for both industry and health promoters to influence public health behaviours. This protocol describes a standardised, replicable process for investigations that can be tailored to various areas of research interest, allowing comparison of content and features across public health topics. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• March 2023

Bullying is now regarded as a health problem and not just a disciplinary problem. Increasing evidence shows both traditional bullying (e.g. hitting, teasing) and cyberbullying have lasting effects on young people (both those who bully and those who are bullied), including damage to self-esteem, academic results and mental health. ...

• 1. Telethon Kids Institute
• Our research
• Research Topics

Each day of school missed makes a difference, with the effect on learning accumulating over time. From an early age, if children are taught that they need to 'show up' for school and make a commitment, this positive mentality aids academic and career success and brings benefits in adulthood. ...

• 1. Telethon Kids Institute
• Our research
• Research Topics