The objective of this paper was to measure changes in caesarean delivery rates for primiparous women in Western Australia during 1995–2010 stratified by... ...

• 1. Telethon Kids Institute
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• 2015
• July 2015

To examine the lived experiences of young people successfully managing life with ADHD and investigate the applicability of adult models of Recovery to these individuals. ...

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• 2022
• August 2022

Desiree Silva DS MBBS, FRACP, MPH, PhD Co-Head, The ORIGINS Project Co-Head, The ORIGINS Project Professor Desiree Silva is co-director for the ORIGINS Project and a professor of paediatrics at the University of Western Australia and Joondalup ...

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A severity assessment was rapidly developed with input from multiple stakeholders. Refinement through ongoing validation is required for future clinical trials. ...

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• 2019
• August 2019

Ella Alix Carton Woolard EC AW Bsc (Hons) BPsych (Hons), PhD PhD Candidate Senior Research Fellow 08 6319 1823 Ella.carton@telethonkids.org.au Alix.woolard@telethonkids.org.au PhD Candidate Postdoctoral Research Fellow in Child Mental Health she/her ...

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Helen Jenny Leonard Downs HM JA MBChB MPH BApplSci (physio) MSc PhD Principal Research Fellow Program Head, Development and Disability +61 419 956 946 08 6319 1763 helen.leonard@telethonkids.org.au Jenny.Downs@telethonkids.org.au Principal Research ...

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CDKL5 Deficiency Disorder (CDD) is a rare genetic disorder caused by a mutation in the cyclin-dependent kinase-like 5 (CDKL5) gene. It is now considered to be a developmental and epileptic encephalopathy because of the early onset of seizures in association with severe global delay. Other features include cortical visual impairment, sleep and gastro-intestinal problems. Progress in clinical understanding, especially regarding the spectrum of functional ability, seizure patterns, and other comorbidities was initially slow but accelerated in 2012 with the establishment of the International CDKL5 Database (ICDD). Our aim was to use this data source to investigate quality of life (QOL) and associated factors in this disorder. ...

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• 2021
• January 2021

Maternal pre-pregnancy obesity has been linked with an increased risk for negative emotionality and inattentiveness in offspring in early childhood. ...

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• 2013
• January 2013

To investigate quality of life (QOL) and psychosocial well-being in youth with neuromuscular disorders (NMDs) who are wheelchair users. ...

• 1. Telethon Kids Institute
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• 2017
• May 2017

Yasmin Harman-Smith YHS BA, BHlthSc(Hons), PhD Head, Early Years Systems Evidence; Head, Tenders Support Unit Yasmin.harman-smith@telethonkids.org.au Head, Early Years Systems Evidence; Head, Tenders Support Unit Associate Professor Yasmin ...

• 1. Telethon Kids Institute
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• Past projects

In view of its side effect profile, ketogenic diet (KD) administration should be supervised by a pediatric neurologist and specialist dietician. ...

• 1. Telethon Kids Institute
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• 2017
• August 2017

Prevalence and determinants of sleep problems in Rett syndrome ...

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• 2016
• September 2016