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        541-552 of 575 results for 'fasd'

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        Intellectual Disability

        About 2 per cent of children are estimated to have an intellectual disability. The cause of the condition is unknown in at least 50 per cent of cases. ...

        Research

        Rett Syndrome

        A severe neurodevelopmental disorder mostly affecting girls. ...

        Research

        Functioning, participation, and quality of life in children with intellectual disability: an observational study

        To investigate associations between functioning, community participation, and quality of life (QoL) and identify whether participation mediates the effects of functioning on QoL. ...

        Research

        Characterising quality of life and its determinants for children with intellectual disability and their families

        Andrew Helen Jenny Nada Peter Whitehouse Watch and listen to Andrew Leonard Downs Murphy Jacoby AJ HM JA NM PJ PhD MBChB MPH BApplSci (physio) MSc PhD MAPP BA (Hons) MSc Angela Wright Bennett Professor of Autism Research at Telethon Kids and ...

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        Impact for DCD

        Melissa Gail Matt Jenny Andrew Licari Alvares Cooper Downs Whitehouse Watch and listen to Andrew ML GA MC JA AJ PhD PhD BCA Marketing, BSc Statistics and Applied Statistics, PhD BApplSci (physio) MSc PhD PhD Senior Research Fellow Senior Research ...

        Research

        A validation study of a modified Bouchard activity record that extends the concept of 'uptime' to Rett syndrome

        The aim of this study was to investigate the validity of using a Bouchard activity record (BAR) in individuals with Rett syndrome to measure physical... ...

        Research

        The development, content and response process validation of a caregiver-reported severity measure for CDKL5 deficiency disorder

        CDKL5 Deficiency Disorder (CDD) is a severe X-linked developmental and epileptic encephalopathy. Existing developmental outcome measures have floor effects and cannot capture incremental changes in symptoms. We modified the caregiver portion of a CDD clinical severity assessment (CCSA) and assessed content and response-process validity.  ...

        Research

        Priority-setting in youth with chronic conditions

        Amy Keely Liz Leanne Elmie Bec Finlay-Jones Bebbington Davis Fried Janse Van Rensburg Sampson AFJ KB EA LF EJVR BS BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) MClinPsych/PhD MBBS FRACP PhD BSc DipEd MSpEd EdD BA, BSc BSc, BPsych ( ...

        Research

        The effect of functioning on Quality of Life Inventory-Disability measured quality of life is not mediated or moderated by parental psychological distress

        The measurement of quality of life (QOL) in children with intellectual disability often relies upon proxy report via caregivers. The current study investigated whether caregiver psychological distress mediates or moderates the effects of impairment on their ratings of QOL in children with intellectual disability. ...

        Research

        Data Linkage: Canadian and Australian Perspectives on a Valuable Methodology for Intellectual and Developmental Disability Research

        Building data linkage capabilities, and how linked databases can be used to identify persons with IDD and used for population-based research ...

        Research

        Mind The Distance

        Yael Penelope Keely Bep Amy Helen Perry Strauss Bebbington Uink Finlay-Jones Milroy YP PS KB BU AFJ HM BPsych (Hons) MPsych (Clin) PhD BA, MPH, PhD MClinPsych/PhD BPsych(Hons.), MAppPsy(Clinical), PhD BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD ...

        Research

        Validating the Communication and Symbolic Behavior Scales–Developmental Profile Infant–Toddler Checklist (CSBS–DP ITC) Beyond Infancy in the CDKL5 Deficiency Disorder

        CDKL5 deficiency disorder (CDD) results in early-onset epilepsy and lifelong cognitive and motor impairments. With no validated measure for communication in CDD, this study evaluated the psychometric properties of the Communication and Symbolic Behavior Scales-Developmental Profile Infant Toddler Checklist. ...

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