Attention Deficit/hyperactivity disorder (ADHD) is conceptualized differently in the Diagnostic and Statistical Manual (DSM-5), the International Classification of Diseases-10 (ICD-10), and the Hierarchical Taxonomy of Psychopathology (HiTOP) frameworks. This study applied independent cluster confirmatory factor analysis (ICM-CFA), exploratory structure equation model with target rotation (ESEM), and the S-1 bi-factor CFA approaches to evaluate seven ADHD models yielded by different combinations of these taxonomic frameworks. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• May 2021

Improving the wellbeing of Australian children and youth: the importance of bridging the know-do gap ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2010
• January 2010

This study assessed the functional skills of three girls with RTT aged 35 years before and during participation in a CE programme. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2012
• February 2012

There are limited psychometric data on outcome measures for children with Developmental Epileptic Encephalopathies (DEEs), beyond measuring seizures, and no data to describe meaningful change. This study aimed to explore parent perceptions of important differences in functional abilities that would guide their participation in clinical trials. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• December 2023

Developmental and epileptic encephalopathies (DEE) are rare, often monogenic neurodevelopmental conditions. Most affected individuals have refractory seizures. All have multiple severe impairments which can be as life-limiting as or more limiting than the seizures themselves. Mechanism- and gene-targeted therapies for these individually rare, genetic conditions hold hope for treatment, amelioration of disease expression, and even cure.  ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2024
• January 2024

Pulmonary exacerbations in cystic fibrosis are characterized by airway inflammation and may cause irreversible lung damage. Early identification of such exacerbations may facilitate early initiation of treatment, thereby potentially reducing long-term morbidity. Research question: Is it possible to predict pulmonary exacerbations in children with cystic fibrosis, using inflammatory markers obtained from BAL fluid? ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2020
• December 2020

When an infant is developmentally ready, a variety of nutritious foods should be introduced including the ‘more allergenic’ foods during infancy ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• May 2017

Participants demonstrated a good understanding of safe prescribing and antimicrobial stewardship ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2018
• April 2018

The program was associated with a substantial decline in rotavirus attributable non-admitted AGE presentations to ED among children aged <5 years. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2015
• February 2015

Ms Shona Goldsmith (PhD student University of Sydney), Dr Sarah McIntyre (CP Alliance), Dr Michele Hansen, Prof Nadia Badawi (CP Alliance)   Cerebral palsy (CP) is the most common physical disability of childhood, and describes a group of permanent ...

• 1. Telethon Kids Institute
• Projects

Identify entrenched areas of asthma management and treatment in which progress has stalled and to challenge current principles ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2018
• January 2018

These findings suggest that this modified version of SLIT should be considered for retesting of mucosal-based immunotherapy for atopic asthma prevention. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2013
• June 2013