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        Estimated Therapy Costs and Downstream Cost Consequences of iBASIS-Video Interaction to Promote Positive Parenting Intervention vs Usual Care Among Children Displaying Early Behavioral Signs of Autism in Australia

        The growing global prevalence of autism spectrum disorder is associated with increasing costs for support services. Ascertaining the effects of a successful preemptive intervention for infants showing early behavioral signs of autism on human services budgets is highly policy relevant. ...

        Research

        Psychometric properties of QI-Disability in CDKL5 Deficiency Disorder: Establishing readiness for clinical trials

        CDKL5 Deficiency Disorder (CDD) is a rare genetic disorder with symptoms of epilepsy, developmental impairments, and other comorbidities. Currently, there are no outcome measures for CDD with comprehensive evidence of validation. This study aimed to evaluate the psychometric properties of the Quality of Life Inventory-Disability (QI-Disability) in CDD. Quality of Life Inventory-Disability was administered to 152 parent caregivers registered with the International CDKL5 Disorder Database (ICDD). ...

        Research

        Alcohol-Related Harm in Young People

        Melissa Fiona O'Donnell Stanley M FJ BPsych (Hons), MPsych, GradDip Ed, PhD FAA FASSA MSc MD FFPHM FAFPHM FRACP FRANZCOG HonDSc HonDUniv HonFRACGP HonMD HonFRCPCH HonLLB (honoris causa) Honorary Research Associate Patron 08 6319 1176 contact@ ...

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        A study to determine the safety and immunogenicity of 10-valent and 13-valent pneumococcal conjugate vaccines in Papua New Guinean children

        Deborah Peter Peter Lehmann Jacoby Richmond D PJ PC AO, MBBS, MSc BA (Hons) MSc MBBS MRCP(UK) FRACP Honorary Emeritus Fellow Biostatistician Head, Vaccine Trials Group Peter.Jacoby@telethonkids.org.au Honorary Emeritus Fellow Biostatistician Head, ...

        Research

        RHD Action

        Rosemary Sophie Jonathan Wyber La Vincente Carapetis AM R SLV JR MBChB MPH FRACGP PhD BPsych (Hons) MAppEpi PhD AM MBBS FRACP FAFPHM PhD FAHMS Senior Research Fellow Rheach Deputy Director Executive Director; Head, Strep A Translation; Co-Founder of ...

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        LCC Flagship in Educational Equity. Using integrated administrative data to improve educational equity over the life course. UWA component - Evaluation of the Adult Migrant English Program

        Francis Ha Mitrou Nguyen FG HN BEc PhD Program Head, Population Health, and Team Head, Human Development and Community Wellbeing Senior Research Fellow 08 6319 1499 francis.mitrou@telethonkids.org.au Program Head, Population Health, and Team Head, ...

        Research

        Prenatal Exposure to General Anesthesia and Childhood Behavioral Deficit

        Exposure to surgery and anesthesia in early childhood has been found to be associated with an increased risk of behavioral deficits. While the US Food and Drug Administration (FDA) has warned against prenatal exposure to anesthetic drugs, little clinical evidence exists to support this recommendation. ...

        Research

        Australian First Nations response to the pandemic: A dramatic reversal of the ‘gap’

        Until the recent death in Dubbo of an Aboriginal man, there have been no deaths from Covid 19 in Australia. The extraordinary success of Aboriginal and Torres Strait Islander populations in controlling the effects of this pandemic has been a global role model. ...

        Research

        Occurrence of psychosis and bipolar disorder in adults with autism: A systematic review and meta-analysis

        Evidence suggests that individuals with autism spectrum disorder have increased rates of co-occurring psychosis and/or bipolar disorder. Considering the peak age of onset for psychosis and bipolar disorder occurs in adulthood, we investigated the co-occurrence of these disorders in adults with autism. ...

        Research

        A broad autism phenotype expressed in facial morphology

        These data provide the first evidence for a broad autism phenotype expressed in a physical characteristic ...

        Research

        Time to tackle rheumatic heart disease: Data needed to drive global policy dialogues

        This report provides an update on the contemporary global and regional policy landscapes relevant to rheumatic heart disease ...

        Research

        Non-linear relationship between maternal work hours and child body weight: Evidence from the Western Australian Pregnancy Cohort (Raine) Study

        Fiona Stanley FJ FAA FASSA MSc MD FFPHM FAFPHM FRACP FRANZCOG HonDSc HonDUniv HonFRACGP HonMD HonFRCPCH HonLLB (honoris causa) Patron 08 6319 1176 contact@telethonkids.org.au Patron Named Australian of the Year in 2003, Professor Fiona Stanley is a ...

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