CDKL5 Deficiency Disorder (CDD) is a severe treatment-resistant form of early-onset epilepsy. Current treatment options are often ineffective and associated with adverse effects, forcing families to seek alternative therapies for their children including products derived from cannabis. Reportsof miraculous cures and a public preferencefor 'natural' therapies have resulted in considerable public interest, and so this study aimed to characterize the use of cannabis in these individuals, as well as compare caregiver perceptions of efficacy and safety to objective evidence of seizure control and number of antiepileptic drugs used. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• June 2021

To investigate the long-term effects of early-life recurrent otitis media (OM) and subsequent behavioural problems in children at the age of 10 years. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• November 2023

The goal of the current study was to investigate asthma and mental health among youth in the community. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2012
• January 2012

Tess Mary Alanna Neida Zara Amy Mailing list media enquiries Gregory Brushe Sincovich Sechague Monroy Boulton Finlay-Jones Be Inspired Media Contacts TG MB AS NSM ZB AFJ Join thousands of active subscribers and hear about the brave kids, dedicated ...

• Telethon Kids Institute
• Our research
• Brain and Behaviour
• Population Health Program
• Early Years Systems Evidence

Desiree Stephen Susan Silva Stick Prescott DS SM SL MBBS, FRACP, MPH, PhD MB BChir PhD MRCP FRACP MBBS BMedSci PhD FRACP Co-Head, The ORIGINS Project Head, P4 Respiratory Health for Kids Honorary Research Fellow susan.prescott@telethonkids.org.au ...

• Telethon Kids Institute
• Projects

There is an urgent need to develop high-quality falls prevention services for older adults with intellectual disability ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2020
• May 2020

Our objective is to synthesize the best available evidence to determine the incidence and prevalence of falls in intellectually disabled adults in the community ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• July 2017

Use of patient-reported outcome measures in clinical settings facilitate the delivery of better health care to improve patient health outcomes. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• September 2022

Fiona Stanley FJ FAA FASSA MSc MD FFPHM FAFPHM FRACP FRANZCOG HonDSc HonDUniv HonFRACGP HonMD HonFRCPCH HonLLB (honoris causa) Patron 08 6319 1176 contact@telethonkids.org.au Patron Named Australian of the Year in 2003, Professor Fiona Stanley is a ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• October 2022

Explored Youth with Neuromuscular Disorders perceptions of health, health behaviors and healthcare engagement ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2016
• October 2016

Australia's defence, infectious diseases ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2010
• November 2010

Melissa O'Donnell M BPsych (Hons), MPsych, GradDip Ed, PhD Honorary Research Associate Honorary Research Associate Areas of research expertise: Child maltreatment and linked cross-jurisdictional data. Associate Professor Melissa O'Donnell holds an ...

• Telethon Kids Institute
• Projects